Hi Jules

The care coordinator is a new thing the GP is doing as the hospital as told them I think, that's all I know still waiting for care coordinator to get back to me & my Dad still don't know he has cancer,he just told me all the back of his gum is playing him up & back teeth as can't eat on that side & the ulcer is under his tongue on the base, I got a feeling it's not going to be good news I do hope I m wrong, you take care & thanks for getting back to me x

Hi there phew just caught up on the posts.  Things are slowly moving for you all. I wonder what if will be..... 

Let me say that we are thinking of you and you're dad at this time.  We do so hope it's going to be okay

Xxx

Steven

Hi Mower

Hope the care coordinator is soon in touch and it sounds good that he/she is attached to the GP as that is who will know your Dad's history the best.  You Dad does sound uncomfortable within his mouth but hope when the doc is told they can give him something to help.  Although my husband had his cancer elsewhere eating was often an issue and he often resorted to 'soft food, mashed' and nutritional shakes.  Unfortunately once he had received his palliative chemo treatment his taste and love of food all but disappeared and he said he ate because he needed to - that was a difficult time. Wishing you both a peaceful day.Jules x

Thanks Steve x

Hi Jules

The care coordinator didn't get back to me so I told my Dad on Saturday that he has cancer, he was ok with it & said he's had a good life & not to worry easier said then done. You take care x

Hi Mower,

That was so brave of you but I suspect he was not completely surprised as no doubt had been keeping his own thoughts close to his chest. At least now you can both be open about appointments/treatment options etc when he has his appointment. I know its easier said than done when it comes to worrying (he sounds just like my Dad was) but the older generation have seen more than we have (lived more too) and I know you will continue to look out for each other during this time. Sending virtual hugs and the forum is always open. Jules x

Hi Jules

I did ask my Dad if he had a feeling it was cancer & he said  no he had no idea it could be cancer, but I think deep down he did. Yes Jules they have lived more then we have & it was hard back then not like today. You take care x

Good morning mower

Hoping that when the appointment comes, not long till the 22nd,  everything will be explained to you both (dont forget to write down all your questions and perhaps the replies too as it may well be a lot to process at the time and I found it good to have it to refer to afterwards).  Perhaps by then the care coordinator will have been in touch (if not get back to your Dad's GP as sadly sometimes with their workloads things slip through the net - not right I know but it happens) plus it would be good for you to have a 'name' to contact.

Off to work shortly so take care of yourself and if you can let the forum know how Dad gets on. Regards Jules

Morning Jules

It's tomorrow at 10 past 9 we will see the consultant, my Dad got me to have a look in his mouth & it looks bad plus I had a feel of his neck & he has 2 lumps ever size of his neck, I could be wrong but the lumps are big & the top gum has white little spots on, but will soon know & I will let you all know as soon as I get back, you have a nice time at work as I got back from my morning job at 9am & now at my Dad's till 2.30pm then at my other job at 3pm till 6.30pm then say with my Dad till 8pm, then home & up for work at 3am all good fun lol. You take care x