Husband newly diagnosed

Hi all, my husband has recently been diagnosed with aggressive prostate cancer.  He is in the process of having  scans to determine if the cancer has spread.  His Glesson score was 9. the urologist said he needs the prostate removed and the radiotherapy, but if it has spread they will rethink his treatment.  I am going out of my mind with worry, I think it's because everything is unclear at the moment.  I hope it will get easier when we know if the operation is going ahead.  Lolly.

 

 

 

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  • Hi lollypop

    So pleased the lovely Brian has responded to you as he has a wealth of first hand knowledge in this area and is a great forum member.  I really just wanted to add my welcome (and could not resist your avatar picture as it used to be my fave lolly (many moons ago!!).  Brian is right when he says the waiting is often the very worst part of a cancer diagnosis and I hope that once the necessary results are through your understanding about what is happening/treatment/ etc will help answer many questions you and your husband will have.  It might well  be worth writing down your questions to take to the next appointment as we found it helped jog our memory (which was often foggy at such times).  Hope you will find the forum a helpful resource. Regards Jules54

  • Hi Jules, my hubby's appointment has come through, he has to go on Thursday to see the urologist.  If the Cancer has spread I don't think they will operate, this is the difficult thing for me.  I suppose I feel that there is a good chance it can be cured if they can. Thank you for your advise about the list, my head is full of questions but I am sure I would forget all of them when we are with the surgeon.  Thanks again, I will keep you updated.  Lolly.

  • Hi Jules, just returned from hospital, unfortunately the Cancer has broke through the prostrate. Hubby going in on Tuesday for the op to remove prostrate then radiotherapy. So fingers crossed it will be ok.  The long road to recovery starts now.  Thanks for all your support.  Regards Lolly. X

  • Thanks for update Lolly.  Good to know that the op can go ahead and you do not have too long to wait to get treatment under way.  Wishing you both all the very best. Expect it will take you both time to process all that you heard today. Take car and sending virtual hugs  Jules x

  • Hi Lollypop,

    Thanks for the update. Sorry to hear the cancer has broken out but radiotherapy treatment is very effective these days. They may even consider hormone therapy as well.

    Wishing you both all the very best for Tuesday, Brian.

  • Thank you Brian, I feel a little bit more possative after today's meeting, even though the urologist said they may not be able to cure John.  But at least they are giving it a good shot.  Thanks again for your support lolly.

  • H, i Lollypop,

    It is usually the case when cancer has escaped the prostate that it can not be cured which is what my brother in law was told. But having said that, it can be controlled for many years so please take heart from that.

    Best wishes, Brian.

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    Hi Loolypop,  Just read your post and wanted to say how difficult it is being the otherhalf.  My daughter had 2 years cancer treatment at age 10 - now nearly 30!   I was so busy with sick bowls, infections and hosp stays and having to be in the here and now that  I had no time to worry, just concentrating on being a Mum!   I had  the support of a wonderful children's ward staff and my hubby by my side taking care of our other daughter and things at home.

    I had breast cancer in 2011 but far the worst was my husband's Prostate cancer diagnosis.  Waiting for results at what ever stage of the journey you are on is so awful. You feel so useless.  Not being able to share all your worries with somebody who normally helps you though the bad patches in life is very difficult.

    Anyway just wanted to say that My Hubby had a radical prostectomy in 2008  at age 58, (he has just retired) with a gleason score of 7. The analysis post op was that the cancer was widespread and aggressive, but still contained, so he was very lucky, most men are at a much later stage.  Hopefully the radiotherapy will clear any local escape of cancer.  I don't think they offer the removal of the prostate unless they think there is a  good chance of getting the cancer. We were told that he would only be offered the op if it was contained so your  consultants must think they can remove the cancer and zap anything thats lerking outside the prostate.

    I hope this helps a little, gardenlady

  • Hi gardenlady, thank you so much for your post.  It makes it so much easier when you hear other stories.  My hubby's urologist thought it was worth a try, which we are so grateful for.  He did give us the impression that he couldn't be sure it would work because his Cancer was so aggressive, so as I previously said thank goodness he was willing to try.  I will keep everyone updated on his progress.  Thanks again everyone, you have all be so kind and helpful.  Regards Lolly xx

  • Hi Lolly

    Just wanted to drop by your thread and wish you both all the  best for your husband's op tomorrow.  Hope it goes the best it possibly can. Regards Jules x

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    Hi Jules, thank you so much for your message.  Tomorrow is going to be a very long day, but I pray we have a positive result at the end of it.  My hubby's is still not talking about the Cancer so it is great to be able to express my feelings on here.

    Thanks again everyone, I will keep you up to date on his recovery. Lolly x

     

  • Hi Lollypop, hope today went well for your husband and you. Just wanted to share my dad's story with you to hopefully give you some positive vibes... My dad was diagnosed with aggressive prostate cancer that had aready 'escaped' the prostate 15 years ago. They didn't offer him an op to remove it, as it had already spread but there has been lots of progress and changes of direction on how they deal with PC since then and every case is different. He has been looked after extremely well by his medical team (he too was only in his 50s when diagnosed so it was a huge shock to us all) for all these years. Unfortunately recently, the news hasn't been good, BUT that is after 15 years of being pretty damn fine and, although his retirement has been compromised a bit with hospital appointments etc, he really has been well and enjoying his life. Just wanted to let you know that it doesn't always have to be the end of normal life. Keep strong, I know how scary and nerve wracking this all is.

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  • Hi Lollypop, hope today went well for your husband and you. Just wanted to share my dad's story with you to hopefully give you some positive vibes... My dad was diagnosed with aggressive prostate cancer that had aready 'escaped' the prostate 15 years ago. They didn't offer him an op to remove it, as it had already spread but there has been lots of progress and changes of direction on how they deal with PC since then and every case is different. He has been looked after extremely well by his medical team (he too was only in his 50s when diagnosed so it was a huge shock to us all) for all these years. Unfortunately recently, the news hasn't been good, BUT that is after 15 years of being pretty damn fine and, although his retirement has been compromised a bit with hospital appointments etc, he really has been well and enjoying his life. Just wanted to let you know that it doesn't always have to be the end of normal life. Keep strong, I know how scary and nerve wracking this all is.

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