Hi Sara,

I'm so sorry to read what you are going through and like many others on this forum can relate to your feelings having lost my Mum and Dad to this disease in 2013.  I have replied to your first post (which I think is on about page 6 or 7 of the forum now), but seeing that you have posted new threads wanted to reply again.  It is so terrifying to face losing somebody we love and you don't have to be strong all the time. I never thought I would cope when my parents were diagnosed but somehow I did, we all do, mostly because we have to, but along the way it is OK to cry, rant and be just however you feel.  This site is a great support so you never have to feel alone.  Take care and I hope you will read my original reply too.  Hope x

Hi Hope

I have manged to find the post you were referring to which is actually for another member with a simiar name and very similar situation just wanted to let you know.

Hope to hear back from you soon x

Hi again Sara, so sorry I muddled you up with the person with the same forum name.  How are you doing? Reading through your posts it sounds like you are doing everything for your Mum, I think the card is a lovely idea and I really wished I'd done something similar.  I wish there was something I could say to make you feel a little better but there are little words of comfort when we face losing somebody we love so much. I understand how mad it feels to be doing everyday things and watching life carry on normally for others when you are suffering so much pain yourself.  Sometimes doing the normal things such as work can help a little but sometimes when you feel like your heart is breaking I know it is difficult.  I'm glad you have a supportive boyfriend, but again understand that sometimes it is difficult to explain how you really feel.  I remember feeling very alone at times even though I had my own supportive family.  This site is a great help as people on here really understand and nobody ever judges.  Sometimes it is easier to talk to strangers and I found it helped to write down how I felt.  Please take care and let me know how you are.  Hope x

Hi hope 

im so sorry I thought I had replied to this post? I'm loosing the plot sometimes :) I'm not to bad thank you my sisters wedding is hopefully this wknd I'm finding it hard to look forward to with all that's going on which is a shame tbh as I have never been a bridesmaid and this is the 1st major family wedding. I just hope it all goes ok I wil have my fingers crossed all week. I'm at my mums house now I've taken a day off to be with her. She is fast asleep. I love this site foe me its so good to have people that understand and I think I'll need it more once the inevitable happens. How are u doing?  Is your real name hope? It's a beautiful name. Hope to hear from u soon sara xx

Hi Sara,  I have noticed you have posted another thread and I will post on that one.  Just wanted to say that I hope things go OK for your sister's wedding, I know what a difficult time it must be for everybody. In answer to your question Hope is my user name; I chose it when I joined because I wanted to somehow believe there would be hope for the future despite losing Mum & Dad so quickly.  The site helped me a lot and I'm glad you are finding it helpful to.  Will post on your other thread now.   Hope x

Hi Sara,  I have noticed you have posted another thread and I will post on that one.  Just wanted to say that I hope things go OK for your sister's wedding, I know what a difficult time it must be for everybody. In answer to your question Hope is my user name; I chose it when I joined because I wanted to somehow believe there would be hope for the future despite losing Mum & Dad so quickly.  The site helped me a lot and I'm glad you are finding it helpful to.  Will post on your other thread now.   Hope x

Good evening Hope,

Thanks so much for all your kind wishes for the wedding thats really sweet of you.

Im feeling very anxious about it all and very under pressure i really hope it will all be ok, we are having a carer come to the wedding in the evening to help out with my mum and if she needs to rest the carer can look after her so her husband can have a break. It doesnt make me feel any better about the whole day though. We still have a long way to go (in her world) and i hope she is ok on the day and is not to over whelmed, tired, in pain, scared of all the people there i just dont know how she will react at all and im worrying about it terribly!

I will reply to your other post now. Keep in touch xx

Hi Hope

How are you ive not heard from you in a while i hope you are keeping well xx