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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Brian

    Good to hear that your Brother in Law is a little improved. Am sure you have lots of helpful advice for them as regards 'little and often' snacks to help with eating (such a familiar subject for me as I think I even dream about how best to improve this side of things).

    Glad your granddaughter enjoyed her 'meet the authors' experience - think its wonderful she is getting such encouragement/experience whilst young andf am sure it will spur her on in her own writings.

    We had a reasonable weekend thank you.  Hubby came with me for babysitting duties (Zack slept throughout!) and we even stopped at a Kebab shop en route home (his suggestion) and shared one for supper!! (no good for the waistline for me but I did not care!!!).  Sunday was quiet and I threw myself into housework and a second visit to the launderette.  Really am trying to keep things as 'normal' as possible which is what hubby prefers. I craftily went to work yesterday and left a few snacks/cakes in 'easy to see' areas and was rewarded with a few 'gone missing' by the time I came home.  Every day seems to bring something different but thats life I guess.

    On the bandwagon with social services again re Mum but  having been told that her old s.w. no longer on the department was 'knocked back' when she rang herself yesterday to say she had  been re-assigned to Mum.  Having not been impressed with her handling of the situation a year ago I have politely requested that we have a 'fresh pair of eyes' for Mum's re-assessment.  Understandably she was not too happy but has agreed to refer back to her Manager and let me know.  I am not sure how my Mum will react if I have to break the news that she has the same s.w. as she was happy when I told  her she had 'left'.  Will visit Mum later today but 'keeping mum' as regards s.w. until I know for definite what is happening.  Sometimes wish life would throw me a break.

    Love the new idea you have for  your woodturning (especially the hedgehogs) and look forward to seeing the results of your craftmanship.  Sounds like you need to wear a 'head umbrella' in your garage (resembles our in the way of leaks!!!) but hope the inner guttering kept you dry.  Certainly felt a little cooler yesterday evening and had to put the fire on for the first time this Autumn (only to turn it off after a couple of hours because we were too warm!!)

    Have a good day and regards to you and Mrs B.  Jules x

  • Hello Jules ,nice to see hubby making more of an effort and enjoying a kebab together and babysitting Zac together lovely ..And your mum I think a new sw new eyes and ideas can only be good fingers crossed for you ..Life has thrown me a new problem to cope with ,my eldest daughter Andrea woke in the night on thursday last week with a bad head sweating and her sight was affected she tryed to get out of bed but couldnt walk she thought she had a stroke but various scans and tests showed that she has m s she still cant walk but physios are helping with that she is so week at the moment its hurtfull to see im speaking to the Dr this afternoon because I dont know a lot about m s and want answers ,it never rains but it poors eh ..We had thunder and lightening in the night and the rain well I know the gardens need it but not so much thankyou ..So it sounds as if hubby took Drs advice I so glad and you must be pleased ..Take care Jules hugs sent as usual   ...Susananne...

  • Hi Susananne

    Thanks for you kind words and its a tremendous relief when hubby eats a little more or achieves what we would call 'normal activities'.  His GP was gently blunt about how he should be appreciating his current quality of life rather than letting it pass him by so I am trying the gentle encouragement and some days it works.

    The news regarding Andrea must have been a real shock for you and the whole family.  During my kid's school years I worked as a cleaner for a chap with MS and also one of the parents also suffers from it.  It affects people in varying degrees and I do hope  she gets all the help she needs during these early days of diagnosis.  I know there is an MS Society (this was the source of most information for my husband's workmate whose wife has had it since she was 18 (following the birth of her daughter) - she is now mid 70's!  Life's stresses certainly keep us on our toes.

    Have just returned from visiting Mum and apart from choosing coffee over tea when it came round she did not communicate with me apart from a nod so not such a good day for her.  They continue to try and involve her in whats going on but its not an easy road to travel when bi-polar depression is involved.  The sun was shining brightly when I left so enjoyed the walk home and have just managed to get hubby to eat the  breakfast that has been sitting on the side since I left - just as well I had not poured the milk on the cereal .  Will give him one of the shakes later as he will not fancy lunch though hope to tempt him with a slow walk to the local coffee shop (not really that interested in following doc's advice with a stroll a day so far).

    Take care of yourself and let me know how things are going when  you have the time.  Virtual hugs  Jules x

  • Hi Jules,

    Glad some of your snacks had disappeared when you got home yesterday. At least Hubby is trying. Hope you can get a new social worker for your mother and that this time they see sense. Have spent the morning and early part of the afternoon turning my hedgehogs, (see attached photo) Like all my new lines, the first one took the longest but the last ones I was able to turn in about ten minutes. The mice will be next but will wait until my leather off cuts have arrived first for I will make their ears and tails out of the leather and need to get the proportion right. Will also be able to use the leather to turn some of my wooden owls into long eared owls. May have a go tomorow at the rustic trinket box I spoke about instead.

    Picked up some more chestnuts today and it seems the counter staff all know about me and ny love of nuts Brianitus in now rife

    I hope my brother in law will start his chemo tomorow for it has been delayed twice now for very good reasons.

    I am sorry your mother was having a non communication day today. It must be so hard for you to try and make conversation with her when she is having a bad day.

    Hope the rest of the week at work is not too busy. I suppose you are now taking deliver of the annuals so will work be getting busier now?

    Take care Jules, best wishes to you, hubby and family, hugs, Brian

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  • Morning Brian

    Loving the hedgehogs and am sure they will sell well.  Will keep everything crossed that your brother in law can begin his chemotherapy treatment today and that it helps his condition. After my non work day yesterday (paid that is) and it being pretty silent, am looking forward to getting to work and interacting with our customers.  Yes, we are getting 'seasonally busy' and are also in the process of moving stock around to make room for seasonal products.  The Annuals have, believe it or not, been on sale for over a month already and always a favourite (the adult titles as well as the childrens).  Christmas seems to be getting earlier and earlier in the shops (though our local shops are done up for Halloween at present they still have Christmas stock inside!!) in town though customers say they appreciate being able to spread the cost!

    Well hubby not been outside since the weekend (I tried yesterday to encourage him but its not something you can force) but I am hoping he will go out to the pharmacy today as he  has items to collect (he usually texts me to collect them on the way back from work).  He is already up though struggling to stay awake (this seems to be his usual routine once  he takes his medication no matter what time of the day he takes it) though his GP is adamant he is well enough physically to be going for a stroll hubby feels there is no point and still rarely leaves his chair. I know the GP is aware this is a form of depression(he is on low dosage anti depressants) and I can see similar characteristics to how my Mother behaves. In some ways this is more stressful to watch  as its not something you can help with but at least I have had 'years of practice' through my Mother's circumstances so know its something that I cannot solve - frustrating at times though.

    Well morning ramble over, I am off to work and hope to see a smile when I return.  Have a peaceful day and hope your 'leather requisites' arrive so you can make mice.  All the best to you and Mrs B. Jules x

  • Hi You all I have not been to this place for some time but today we took Beverley out for lunch and she ate well and looked fantastic still on chemo untill December has good days and bad days but she is going about

    the whole thing great, like walks her dog every day and likes to cook for brad when he gets home at night .I am lucky very lucky I have two great kids and three grandkids and REECE our great grandson.a good life for a 81 year old get ,regards george

  • Hello George

    Lovely to log on and find an update from you on my thread.  Brilliant to read that your daughter is coping with her current treatment and with such wonderful support around her too.  How are you keeping yourself at 81 years young?  Best wishes  Jules x

  • Hi Jules I am OK a  great deal of pain most of the day ankle.elbow.knee .but I walk my RIA or she walks me every day .I spend time on my garden 2 or 3 hours a day but I love it .I hope you and yours are all well

    take great care .george .

  • Thanks for your reply George. Good to know that Ria is keeping you as fit at possible and that you continue to enjoy your garden, walks and family, Have a peaceful weekend.  Following the heavy downpours I will have to break out the wellies when I next venture into our garden though am still mowing when dry weather permits. Last few cooler mornings has seen an increase in my feathered friends visiting our feeding station.  Take care.Jules x

  • Hi jules I cannot feeds my birds they have three cats next door  so RIA and I go up the bridal path and feed maggies .crows.robins.*** and cyrells them with peanuts they take them off my hand even with RIA with me .

    I do have a good life I cannot sit untill night when I go online .best wishe`s for now george