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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Brian

    Think this  might be Scott Westerfeld- American Science Fiction writer (young adult fiction).  Hope your grand-daughter enjoys the experience.Jules x

  • Hi Julie's

    I thought I'd leave you a message to say

    I'm thinking of you and your hubby and I really

    Hope that he takes yours and GPS advice on

    Board as I know when I could walk and was not feeling

    Myself or sick abit of fresh air always does you good

    And lifts you're moods ect. I'm sure like you said it

    Will be a slow process but tiny steps are a good

    Thing better than nothing. Hugs xxx

  • Hi Mylittlesunshine

    Lovely to log on to your message this morning and thanks for your support.  We took a little step backwards yesterday evening when hubby fell indoors so he is feeling a bit bruised (just lost his balance when he tried to step over his computer). Probably will effect his confidence (not that he has much  at the moment) but will keep up the encouragement.  Really wish he would use a stick for added support but ignores these suggestions.

    How are you?  Are you now being looked after at your local hospital as I know  you were hoping this would be an improvement for you.  Sending hugs.  Jules x

  • Hi Jules,

    Just got home from the Cancer Research event at Southampton. Had a great day and met a lot of nice people, including the Cancer Research staff who organized the event, plus I learnt a lot more. I personally think it's great that Cancer Research want to involve cancer patients and carers to help formulate their strategy which is why I was keen to attend. Nearly two hours driving each way and the longest I have driven for some while. My poor car is as tired as I am.

    Tomorow it's back to normal and I hope to glue my two new chess boards down to the base boards. Then it s matter of fixing the edging strips on, sanding them and the polishing them

    Jules I am sorry to hear your hubby had a fall and hope it wont have a long term affect on him. When I had my fall I only used my crutch when I really needed to. We men don't like to appear weak by having to use an aid to help us walk. Mrs B  used to get very frustrated with me.

    I bet you are glad youve finished work for the week. Just wishing you all the best, Brian.



  • Hello my lovely friends

    Just paying a quick visit and wanted to drop off a little love to you all.

    If anybody ever wants to contact me, post a message on branchial cyst and it will send me an alert.

    Massive hug from an autumnal milton keynes

    Lisa xX

  • Hi Lisa,

    Lovely to see your name crop up again.

    How are you doing?

    It really is becoming autumnal now with the leaves coming down at a regular rate.

    However the temperatures for this time of year ae still unbelieveable.

    Tomorrow supposed to be wet up here, fingers crossed not all day.

    Take care now

    hugs

    Annabel. xx

  • Hi Brian

    Glad the meeting went well and I am sure it helps all concerned to have imput from all sides of the spectrum - so many different aspects to this illness and ongoing learning and research is vital if the world is to see more medical treatments become more widely available.  Hope you have recovered from the tiring journey and that you have a few 'nutty' treats to help.  What news on your brother in law - hope he is feeling more comfortable?

    Hubby does not seem to have been physically hurt by his fall  thankfully but it certainly did  not help his confidence understandably.  Still he managed to go out with his friend last night and enjoyed the atmosphere of the pub for the evening (one small step and all that!!). We also had a visit from our daughter and Zack who gives us all something to smile about.  He is now crawling as well as walking round the furniture so it's 'look out he he comes' and his elder brother is seeing a whole new side to having a little brother!!!  So far so good but the 'no word' is being well rehearsed ha ha.  Despite Zack having eaten all his own lunch here yesterday when I sat down to my tuna sandwich I immediately had interested company (and less lunch!!).  It was a very lighthearted couple of hours and recommended therapy.  Hubby slept some of the time but also enjoyed seeing them both and they went home with some 'ice cream'pocket money to make the eldest grandson smile when then picked him up from after school football.  We are on babysitting duty tonight as the eldest is going with his parents to see local Seussical production and is very excited especially as he will be 'up late' and seeing Cat in the Hat and associates!!  Will love to hear all about it.

    Have just done a 'speed mow' in the back garden (should have done it yesterday when the sun was shining) and at least hubby laughed at my attempts to beat the rain clouds - only just made it but got the mower away just a the rain fell.  Still quite humid for October but suppose I will have to wear a raincoat now.  Hoping to go shopping together for the first time in weeks later (GP says hubby  must make the effort to get out of the house if he is to value the quality of life he has been given by the holding chemo treatment but its not something you can force where the mind is concerned).  If he feels unable to manage then I will pop out alone later but I  want to give him the chance and the decision has to be his still.

    Hope you and Mrs B have a peaceful weekend.  Regards  Jules x

  • Hi Lisa

    Lovely to see your name on my thread and know you will be supporting Access on  his thread too.  Hope you and Paul are keeping well and no doubt busy with day to day life.  I have just done a speed mow out the back and now watching Robin and goldfinches on the feeders despite the rain (or perhaps because of it - no cats in the garden). Still doing my best to make the most of each day and our children/grandchildren keep us smiling - little Zack turns one in a couple of weeks and I am still asking myself where the last year has gone.   The autumn has reached us here in Middlesex too (love the colours and still keeping decent temperatures for this time of year) and next visit to the park with our eldest grandson will not doubt bring on the 'running through leaves' again.    All the best to you and the family.  Jules x

  • Hi Lisa,

    Haven't spoken to you for a while. Haven't been on here quite so much recently as I have been so busy with a whole lot of things including my woodwork. But It will probably soon be turning cold and it's surprising how quickly I loss enthusiasm when the weather turns. I used to be out there regardless of the cold but doing woodturning you have to stand in one place and you get the draught off the machine as well. In  the past my hands have been so cold I could hardly hold the tools so now I am older, I try to get things completed before the weather turns.

    Sending you best wishes and kind thoughts and hugs, Brian

  • Hi Jules,

    Hope you had a good weekend. Glad you had a lovely visit from family. I was pleased that hubby was able to enjoy his Friday night out.

    Granddaughter enjoyed her visit to London and had a master class with the author you named. They also went to another place and found another author signing books. She now had about a dozen books singned.

    I have come up with another couple of new ideas for turning, wooden mice and hedghogs. The later I will heavily wire brush to obtain the textured fininish and the mouse will have leather ears and tails and both will have turned wooden eyes. I will post pictures when completed. I also have an idea for a hinged top rustic trinket box.

    Brother in law came home but is still not eating well and still has pains but is better tha he was thank you. I mowed out lawns last Wednesday but the back lawn has grown like mad and need mowing again.

    I wish you a stress free week, take care best wishes to you Brian.