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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Jules

    So glad everything is back to normal for you after a very eventful few days.  I think hubby is probably right about getting the pipework replaced - if one bit goes then it is possible another bit will go and you certianly don't want that.

    It was lovely that your daughter did two loads of washing for you and on her anniversary.  Are you planning to replace the washing machine as well or is that a step too far financially with everything else.

    Hope your return to work is not manic at all.

    Best wishes.

    Gill

  • Hi Gill,

    Just seen your post to Brian and I'm thrilled to see your scan results! A good day all round it would seem!

    Take care and remember to keep pacing yourself at work!

    Hugs to you, Jo xx

  • Hi Brian,

    Haven't spoken for a while, but was so glad to see from your post that your recent results were good.  Think of you often and of all the support you have given me over the past year.  Take care.  Hope x

    Hi Jules,  Hope all good with you, will reply to your PM soon.  Hope x

  • Hi Gill

    So pleased to read your good news from the scan and am sure the three monthly check ups will soon be thing of the past too. Consultant sounds really positive too and once your precautionary liver scan appointment done and dusted no doubt life will feel settled again.  Hope your other half and Alice are able to help with the celebrations.

    Have been without a washing machine since last September and with just the two of us and the launderette just 10 mins walk away its not on the list of 'must haves'  at present.  My daughter always offers bless her but it was just because there was a load of sodden towels from keeping the water at bay which were heavy that I gave in this time! (also gives her an excuse to pop back in to see her Dad without it looking like she's checking on him and he loves the interaction with Zack).

    Normal work routine today and the ongoing support of my workmates to keep me 'coping' will be welcome.  It's been a weird spell of annual leave but we coped and I was lucky with the weather. 

    Look after yourself, sending virtual hugs. Jules x

  • Morning Hope

    Am back to work routine today but have been so lucky with the weather during my annual leave (could have done without the cold and house traumas but at least I was around to deal with them).  Mind you think Hubby will enjoy a break from me now even though I spent more time in the garden than indoors as was not going to waste the opportunity of the good weather.  He actually only went out once the whole time I was off and that was to visit the GP though before I went anywhere I always checked if he wanted to do anything so I did my best.

    Hope you and the family and all keeping well. Jules x

  • Good morning ladies,

    I hope you don't mind a joint reply. Thanks for taking the time to reply to me and for the kind words re my results. Though I expected them, it is always reassuring to hear them.


    Jules, I hope your first day back at work after your holiday goes well and not too hectic. I also hope your cold has almost gone. I hope to re-paint the garage back door today as earlier this year with all the rain it swelled so much I couldn't get it open.

    Gill, So pleased that you also got good results.

    Jo, it was so nice to hear from you again.

    Hope, likewise and glad to read that you are dealing with your loss better as time goes by.

    I don't think Mrs B knows that I chat to so many lovely ladies on here. I will chat again soon.

    Big hugs to you all, and thank again for all the support you give me, Brian.


  • Morning Brian

    First day back to work and its like the holiday  never happened!!  Same old,same old as they say but good to catch up with regular customers and have workmates to chat to again. After work today I am having coffee with  my late friends husband so we can catch up on family news.  He has returned to work but had this week booked as annual leave and decided to take it anyway so is using the time to 'stay in touch'.  Its two months since she passed away and it only seems like yesterday that I was sitting holding her hand.

    Hope you managed the painting before the rain turned up.  Got the brolly handy for today as weather looks changeable but its already very humid (really pleased I found a 'mac' on my shopping trip but did not realise I would be wearing it quite so soon).

    Think hubby pleased I am back to normal hours so he has some rest from the 'do you want food?' question but it seems thats the only thing I am able to try and help with (perhaps Iam in danger of 'overkill').  He just has no interest in it as the tastebuds seem to have been 'trashed' by the chemo.  Still bought him in some jelly babies yesterday and he had a few after I had gone to bed.  His weight loss is the main issue at present as says his pain is still under control for which we must be thankful.  Has refused to go on the build up drinks and still not bothering with 'little walks'as exercise which the consultant and GP recommended.  I am wondering if he thinks that by sitting all day he wont use up the food energy he is getting but the weight is still falling nevertheless which in turn is leading to weakness. (been crafty this morning in leaving him extra bowl of fruit ready prepared beside his cereal (sounds bad that unless I put it under his nose he just pours a glass of milk and does not eat whilst I am out!!) because I will not be home till late afternoon.

    Sending kind thoughts to your and Mrs B and must now get off to work.  Jules x

  • Hi Jules,

    Managed to get door painted okay and luckily we didn't get any rain here yesterday. Am going out to turn some larger cord pulls , something I have been meaning to do for the last five years or so but have never got around to doing it. Went to see grandson last night and found he had slipped over at school and cut his head. So he was having to sit still and watch a video. He wanted me to sit next to him and the video was Kung Foo Panda. After it had finished he said, "Now you have seen it, next time you come to visit me, would you do me a story about him. There are no flies on him.

    You say your hubby is glad you are back to work but I bet he appreciates all that you do for him in trying to encourage him. We men don't say "thank you" as much as we should do to our women folk. You must get very frustrated at times. Hope you have a good chat with your late best friends husband,

    Take care Jules, best wishes to you and you family, Brian.

    See below for new range of cord pulls.

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  • Hello Jules Just catching up on your post .What a worry

    watching hubby losing weight and eating very little I cant remember if he is on steriods ,only when Tony was feeling rotten and not eating a lot the macmillan nurse suggested steriods and his appetite increased and he felt a lot better ,and he put on weight too so they helped a lot . I am so sorry you had so many problems and bills when you were on leave it never rains but it poors , still all sorted now .Well Rustyand I went for a lovely walk on the beach this morning we did stay dry but got back just in time because it decided   to rain but now 24degs and sunshine .Little James is doing well he weighs 13 lbs and is 11 weeks old now smiling and cooing he is so lovely I wish Tony could see him .I miss him so much .Jules I was wondering have  book sales dropped  Tony bought me a kindle a 4 years ago and I havnt bought a book since  well only on kindle I either get free books or sped no more than 99 pence for one and my 3 daughters have kindles too so just wondered ,I thought I would miss a book to hold but I didnt ..I hope you and hubby have a lovely weekend and the weather is kind to you .Hugs as usual Susananne ..

  • Hi Susananne,

    Have spoken for a while so nice to see your name crop up. Pleased to read rusty and you are still enjoying your walks on the beach. I cant believe little James is 11 weeks old now. I know what you mean about wishing Tony could see him for I often think the same about my mother and my youngest grandson. He was born while she was very ill in hospital and he was also in and out of different hospitals so she never got to see him or hold him. She would have loved to see how all three grandchildren are growing up and would have been so proud of them. I still miss talking to her and having a laugh like we used to do so I do understand how you must miss Tony even more.

    Take care now Susananne, have a great weekend, big hugs being sent your way, Brian.