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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Thanks LMSunshine. So appreciated and especially when I know  you are going through the mill yourself..  Have just had emergency plumber (hubby managed to sort this whilst I was at work ) as no hot water since yesterday (feels like forever!!).  Should return with new part tomorrow to fix problem - another hurdle to jump over lol. Take care and thinking of you too - hugs.Jules x

  • Hi Jules,

    Like your other forum buddies, just wanted to wish you well for tomorrow's appt with your mum. Let us know how it goes. x

    Hope you get your plumbing probs sorted too!

    Hugs on their way, Jo xxx

    p.s. Gill, glad your first day back is 'under your belt' - let us know how you get on over the next few days xxx

  • Aah Jules, I'm sorry to read that on top of everything else you are now facing a boiler breakdown; I know how frustrating these things are and especially at a time when we are exhausted with other important issues.  I hope you and hubby are "friends" again, we always lash out at those closest to us and I'm sure that is what happened to you both.  Wishing you good luck tomorrow at the meeting as well as getting a plumber to sort out that boiler.  Hope xx

  • Hi Ladies,

    I hope you all don't mind me replying to you all at once.

    Jules.

    Like your other forum friends, just wanted to wish all the best for tomorow both regarding your meeting at the home and also with regard to your hot water system. Hope it all turns out okay.

    LMS.

    Just goes to show what a caring person you are when despite all your own troubles, you still find to to reply to others.

    Jo.

    The same thing apples to you. I ant to wish you all the best for your appointment.

    Hope.

    Haven't spoken to you for a while but just wanted to wish you all the best and to say I often think of you.

    Gill.

    Glad your first day back at work was okay and that your colleges are making sure you don't over do things.

    I wish you all the best take care, Brian.

  • Hi Jules

    Pleased to hear that hubby managed to sort out a plumber.  Hopefully he will turn up nice and early tomorrow with the new part.  I know what you mean about it seeming forever.  It is only when we do not have something that we realise how much we use/need it.  Once it a while I do not think it does any harm to "throw in the towel" especially as you have had so much to contend with recently.

    Give in the biscuit barrel - I know I would.

    Best wishes.

    Gill

  • Hi Jo

    Work was fine this morning and indeed I would have been able to stay rather longer but so many people kept telling me to take it easy and then one colleague said I was beginning to look a bit tired and then everyone was saying I should go home and rest.  Have actually been fine this afternoon.  Thought I would be tired and seem to hae a bit more energy than normal.

    At present I could quite happily go in tomorrow but have said it will be Wednesday in case I get really tired.  May well take a trip to local Department Store's Haberdashery Dept for a few bits and pieces so I can continue on with the sewing.

    Many thanks for thinking of me.  With so much going on for you it is very much appreciated.

    Virtual Hugs coming your way.

    Gill

  • Hi everyone

    Thats brilliant news Gill,  so pleased for you. I think its nice they are all looking after you so well too.

    Great to have some warmer weather again, hope its the same for all.

    Adding to our garden menagerie here. The sparrows are squatting in the housemartins nest from last year. So we have baby sparrows above our bedroom who are starting to fledge, if the highpitched cheeps in the tree are anything to go by. The housemartins are busy building a new nest on the opposite wall (turning their beaks up at my mud tho Brian,not fans of John Innes clearly). Baby starlings keep on coming. And the collared doves are nesting in the busiest tree in the garden, silly things. Papa dove spends most of his time attacking the magpies who havent spotted the nest yet so they are baffled. Oh and a ringed pigeon stopped by today. He watched Paul cut the grass and put food out for him, then flew off without eating it. Paul wasnt impressed to have seed on his nice lawn but the jackdaws took care of it. Hedgehogs eat now and then, would love to set up a night camera!

    We are back at the consultant tomorrow for the two month check up. Not quite sure what to expect, will just have to go with the flow as always.

    Jo, good luck for Wednesday, will be thinking about you.

    Lots of love to all xX

  • Hi Everyone

    Just a quick line to say a huge appreciative thank you for all your good wishes for today.  Not nervous as such just need to hear from the doctors/care team what I need to focus on for the best way forward regarding Mum (it always feels a bit awkward talking on this forum about this aspect of my life as its not cancer related but it does seem to have had a huge impact on the way I am/am not coping with hubby's journey (frustrated by this too)).  Will pop in later (sorry you can't get rid of me that easily) and in the meantime hope you are all doing okay.  Virtual hugs. Jules xx

  • Good morning Jules,

    With regard to what you say about feeling awkward talking about your mothers situation, please you should not feel this to be a problem. I look at it this way, you have enough problems with your hubbies situation and the loss of you dear friend and anything that makes this worse, cancer or not, still need to be talked about for as we all know all to well how stress can build up and up. Talking about our problems is a great stress reliever. I used the forum to talk about how I was feeling when I went to visit my sisters grave for the first time and that was not cancer related but everyone's support made it easier for me to deal with it. You are one of the main responders of this forum despite all the problems you are facing so speaking for myself and I'm sure many others will agree, it is our turn to give the kind of support to you that you have offered to so many of us over the past months.

    Hoping that the meeting with the doctor goes well and will help you resolve some of the problems regarding your dear mother.

    Take care Jules, sending kind thoughts and best wishes your way, big hugs, Brian.

  • Hi Jules

    There is no question of you feeling akward about talking about the problems with your mum on this forum.  You post andvice and support to so many of us despite dealing with everything going in in your life that we welcome any little we can do in return for you.  It helps to talk about any problems (a problem shared is a problem halved) and we are more than happy to offer what little advice and support we can.

    Hope all went well with the doctors and that you now know what is needed.

    Best wishes and virtual hugs coming your way.

    Gill