This discussion has been locked.
You can no longer post new replies to this discussion. If you have a question you can start a new discussion

Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Jules

    You are right there really is no accounting for taste.  I went through a phase of eating frazzles!  As you say as long as hubby is eating something it can only be good even if it is not what most people woud consider good for you.  Just getting some food into him is a good thing.  Perhaps if he is up to it he can go shopping with you again at the weekend and pick up one or two items that take his fancy - who knows he might have an attack of Brianitus.

    Always here for you and will continue to be after I go back to work. 

    Big hugs.

    Gill

  • Hi Brian

    Hope the new owls go well.  I have no doubt they will sell as well as the frames.

    Not suprised that there was an attack of Brianitus.  You can only keep going for so long before an attack is imminent!  You can't be expected to last too long without your nuts.

    Best wishes for the exhibition.

    Gill

  • Hello Jules just saw your text about Hubby and certain foods he cant tolerate  and others he likes  ,reminded me of Tony and my son one day , Justin my son said he loves fish finger sandwiches with a little brown sauce Tony hadnt been feeling like eating and said oooh I realy fancy a fish finger sandwich  so up to my local shop I went  to get fishfingers made him a sandwich not thinking he would eat it all but he did and realy enjoyed it so ended up eating the whole packet as days went on ...He also liked banana and raspberry or banana and strawberry smoothies too ...I know its hard for you as sometimes just the mention of food can put you off cant it, so its a case off have what he wants when he wants it Take care Jules and hope you have a good weekend  ....Susananne x Oh must say I am getting lots of cuddles with baby James he is so lovely ...x

  • Hi Everyone,

    I left my new wooden owl on  it's own with some wooden blanks last night and look what has happened???? And that's only one night. May have to find a bigger house if he/she keeps on re-producing at this rate!!!!!!!!!!!!!!.

    Seriously now, have just had good news re the exhibition, because of last nights rain that Susananne passed on to us (Thanks Susanane) we are now going to be able to hold our exhibition in the main house rather than in a tent so thank you again Susananne, I owe you for that.

    Incidentally, my wife says she never has been able to get any sense out of me and never knows wither I'm being seroise or joking.

    Gill, I hope you enjoy your Easter egg and take care on you phased return to work.

    Must fly, as I need to keep an eye on these owls

    Take care everyone, Brian.

                        

                          [[ ]]

  • How cute they are Brian!

    Lucie

  • Hello Brian ,first there was one now there are four your owl family is growing , you must have been very busy ,and they are so cute too ......Susananne

  • Well we all know about the birds and the  bees so not surprised there has been an increase in numbers - he/she did not want to be alone.  Well done with all  your hard work and so glad you get to keep  your head (and the wood) dry by being indoors rather than under canvas.  Have to say my arthritis does not enjoy this damp weather but the weeds are loving it.

    Hubby saw district nurses today but they could not come up with anything different to help with fatigue/appetite(sadly as so many people know its 'part and parcel' of the disease/medication) so am using the information from my virtual buddies and will see how he goes (weigh in at the end of the month will give us some idea if the snacking is enough) when we see his consultant again.  He has at least eaten a good bowl of soup for lunch which was nice to see.

    Look forward to hearing all about the  Show Brian and hope you are stocked up with nibbles to see you through it.Hugs to  you and Mrs B for the forthcoming weekend.Jules x

  • Hi Susananne

    Love the fish finger story - my daughter has always enjoyed them in sandwiches (As a five  year old she went two weeks on fish fingers for dinner when we were away on holiday amd the owners of the little cafe was always ready and waiting when we came in!!).  I think the food thing is definitely more to do with the 'constant feeling of being full' as soon as he has had a few mouthfuls so we are doing our best to adjust our thinking (I told him we need to think out of the box and Iam sure he thinks I am barmy but he never complains).

    Bet you have a lovely time with cuddly James.  My daughter and Zack (now just over six months) popped into see me at work today (and to offer  me a lift home which sadly had to decline as had some shopping to do which would make her too late for the school run) and he was full of smiles for both me and my friends at work.  Expect we will see the whole family over the weekend some time.

    Drizzly and drab here again today but at least the plants in the garden will be happy!Have a lovely bank holiday weekend.  Jules x

  • Hi Gill

    Your reference to frazzles made me laugh as I had had a bit of a 'frazzled' day at work today.  Hubby's consultant has said in no uncertain terms that he does not need to 'eat healthy' just eat as and when he can.  I am not sure he is actually worried about it (guess who is the worrier in our house) though he did mention it to the district nurses today (says it gave him something to say!!).  He is a very laid back character and not much phases him but he misses being able to enjoy the foods he once loved (especially curries) I am sure.  There are just some things outside our control so its more a case of learning acceptance (especially on my part) and coping on a meal to meal basis.  Have decided to re-assess the 'stock cupboard' and try a variety (which they say is the spice of life) of different ingredients which can be called on to 'step in' -  today it was soup for lunch and hopefully when we go shopping I can get him to show some interest (always ask what he fancies but honestly don't think he's that bothered).  Definitely need to arrange another 'fish and chip' get together with the family  (he usually manages to eat better when they are around even if he cuts down elsewhere beforehand!!).  Enjoy your weekend and as always the support is much appreciated.  Jules x 

  • Hi Brian

    I would be even more impressed if they bred overnight rather than relied on your woodturning skills.

    Glad to hear you will be in the main house as the forecast for the weekend does not sound great.

    Best of luck.

    Gill