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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi Annabel

    No need for apologies.  Its great that you have been enjoying family times (a really good kind of 'tiring').  Look forward to hearing all your news when you find space to breathe. Look after yourself.  Hugs.. Jules xx

  • Thanks Brian and Susananne

    Spent the rest of our day pretty quietly (normal routine resumed!!). I am back into work tomorrow and district nurse due to pop into see hubby (young blonde so he should be pleased).  Hope the weather improves after rain today as have Dahlias I would like to plant.The tulips in the front garden are fading but have a good few wallflowers beginning to bloom and healthy foliage on my fushia bushes  Hope you both have had good days. Virtual hugs. Am going to bed early (trying to play catch up) - hubby has hogged the fire (finds it restful to  lay on the floor periodically as more comfortable that constantly in the chair and is now snoring gently bless him.  I certainly feel a little more relaxed and his support team have reminded me that I can do little more than I am in support (and that hubby must choose how he deals with things).  Its nice that they give us both words of wisdom, helpful advice as well as medical knowhow.  Tomorrow is another day forward.  Take care.  Jules xx

  • Hi Jules

    Glad u got news hubby's condition is stable Hun!! And that you were reassured your supporting all you.can and not doing anything wrong!!! And there was me ranting on my thread!!!! He's doing so well isn't he- sounds like his stubborn streak comes in handy!! It must be a releif to be on the otherside of your appoint ment. Was he annoyed when you let the cat out of the bag?? I can imagine him giving you a look? Lol. I know you must feel you'd like to do more but I know you are the same rock to your hubby that mine is to me. Just knowing he's in my corner and that he's there- he even has a sense of humour and makes me laugh at times!! Thank God for those times!! Are you still getting to the bingo Jules? Any wins? I went on Sunday it took my mind off things for a bit at least!!

    Well results day tomorrow - will let you know!

    Oh and just want to comment on all the lovely photos on your thread- wish I knw how to do that!!!

    Catchup Soon X Ann x

  • Hi Ann

    Will be thinking of  you today and sending lots of hugs.

    Think by now hubby is used to me 'telling it how it is' as without full knowledge they cannot do proper assessment though, for some reason, he has always said I talk too much. I am just one of those people who prefer to know whats going on so I can 'deal with it'.  You cannot help but worry about unknowns even though its outside of your control.  I think we are both pretty stubborn in certain areas (I get that from my Mum lol) and hubby was brought up in a very different way - his Dad would never have dreamed of doing 'housework' - its womans' work  whereas my Dad shared the housework.  In the scheme of things its stupid to let little things rattle my cage but I still return home from work to find his dirty  breakfast dishes on the floor and it 'ticks me off' then you feel guilty about it - crazy!!  Mind you if his old boss gets in touch I can see the pleasure it brings so if he feels able to go in who am I to stop him (his consultant was clearly surprised and has said he ought to be enjoying the freedom of being able to do pleasure trips - she does not get it that he prefers work to fun - always has, always will).

      By the way you were not ranting on your thread just telling us how hurt you feel with regards to your grandson and the situation the family finds itself in -my heart goes out to you on this and I do hope that it can be resolved as I am sure your son must be feeling wrung out by it too. I wonder if they would consider some outside help especially if she is not coping with being a new Mum (I assume she has family to help her).  Anyhow, you look after yourself and use that rock of a husband as a soft cushion and this forum to offload any time - its scary how much I now depend on it to keep me from cracking up.  My kids are great support but I really feel they should be getting on and enjoying their own lives as much as possible so try and stay upbeat when they are around (daughter has a way of reading me too well though!!).  Will be seeing them at the weekend.

    Stay in touch. Jules xx

  • Morning Jules,

    Was so glad to read that hubby's appointment yesterday was good news, must be a big weight off your mind.  Sun is shining today, hope you get time to enjoy it.  Hope xx

    Morning Brian,

    I know Jules won't mind me using her thread to contact you; just wanted to catch up to see how you are as you are always kind enough to keep in touch with me.  I did leave you a reply on my thread a while ago.  Glad to read your grandchildren are as cheeky as ever and always bringing a smile to your face.  Hopexx

  • Hi Jules

    Pleased that hubby has been contacted by his firm as it will make him still feel valued and give him something to do.  I know plenty of people who focus solely on work and do not know what to do with themselves went they stop.  One guy I worked with many years ago retired and was dead within six weeks.  All hie did was sit in the chair staring into space (it was years before there were so many tv channels).  His wife said that he literally would get up sit in his chair and only move to go to the bathroom (would even eat in the chair) and then go to bed at night.  She was firmly convinced that he died of boredom becuase he had not hoibbies and just did not know what to do with his time.

    Was hopong to get out in the garden today but it has just clouded over.  Maybe tomorrow.

    Best wishes

    Gill

  • Thanks Hope, yes definitely felt the relief afterwards.  Even a little be of knowledge goes a long way to help settle my mind.

    Afraid I was at work so missed the sunshine and just after I got indoors the heavens opened!!  Apparently the weekend is supposed to be dry and warmer so hope to make the most of Saturday planting in the garden.  Sunday the kids are popping in so that us sorted.

    Hope you looking after yourself. Hugs   Jules xx

  • Hi Gill

    Lovely to hear from you and hope you are feeling better following your last treatment.  It does sound as if you are a 'bouncing back' type of girl.

      Hubby is in his favourite chair stroking neighbour'scat and enjoying a deeply buttered crumpet for his lunch (he always waits till I get in though sometimes manages to get himself a drink - his Mother has a lot to answer for she even used to clearn his shoes for him!! ).  Whilst I understand his reluctance to find something to do at home that he can manage I have bought him a port-a-puzzle board and jigsaw for his forthcoming birthday which might make a change from tv repeats - hopefully he will like it (and he can get others to help him too).

    Raining here at present so no gardening today but hope to do some planting at the weekend as its supposed to be warmer and dry - fingers crossed.  I am treating myself to a haircut on Friday which always makes me feel better.  Hope you have a good week ahead. Sending hugs.  Jules xx

  • Hi Jules,

    Yes let's hope for warmer weather at the weekend - today has been like Winter again.  Hope you will be spoilt for Mother's Day, no doubt the grandson's will have a few surprises too courtesy of your daughter.  Will you go to the home to visit your Mum?   I will of course be a bit sad on Sunday, but I'm sure my boys will brighten my day the best they can.  Take care and speak soon.  Hope x

  • Morning Hope

    Yes Sunday will be quite busy.In the morning I will visit Mum (I did not go Tuesday because of hubby's hospital appointment).Strange really as we never used to get together on Mother's Day much (though do remember bringing home daffodils from Sunday School when I was very young!!) once I left home and she has already told me not too bother with it!! Hey who says  I still have to do what she says. My son in law is taking my daughter out to lunch (after visiting his Mum) and then they will drop by here and my son and girlfriend are popping in late morning/early afternoon before going to see her Mum.  Its like a jigsaw getting all the pieces to fit together though I have  never been one for making a big day of it as we are Mums all year.  I am sure it will be another emotional anniversary for you to get through but celebrate your own motherhood with pride - your boys are testament to how much you deserve that pampering day. An added bonus is that they are forecasting good weather for it.  Take care and sending hugs. Jules xx