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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

Parents
  • Morning Jules,

    Was just wondering how you got on when you visited your Mum this week, and also how your daughter got on at hospital?  I do hope things are not too stressful for you and that you can try and have a relaxing weekend.

    I'm waiting for my eldest to come home, he has spent somewhat of Freshers sleeping on fellow pupils floors after social events - latest was a toga party last night!  I'm off to my counsellor this morning, had originally been thinking I wouldn't need to see her for too much longer but have been so emotional this week so will talk things over with her.

    The weather is forecast to be nice this weekend but is looking a bit gloomy at present.  Here's hoping it brightens up and the sun shines on us all.  Take care  Hope x

  • Hi Hope

    Hope you visit to the counsellor was helpful and its good for you to be able to talk things through and this should last as long as you need it.

    I have just returned from visiting Mum and she was ok though I am sure a little concerned at how long she will be able to stay where she.  She has amazed the staff at how forthright she was when social worker 'interviewed' her and they are left in no doubt as to what she wants. All the care staff came to see me whilst I was visiting to make sure I was okay too - very sweet.  I stayed until she was due to go into lunch and we even managed a bit of a laugh when I showed her latest photos of her great grandson.  He has really enjoyed his first week in Reception and keeps telling his mum that his teacher is the most beautiful one in the school!!

    Hubby and I picked him up from school on Friday as my daughter had to return to hospital for a second day of tests and monitoring.  Specialist blood tests with regard to her liver function have been sent off and unless she hears otherwise she returns to clinic next Friday.  The last set of bloods were borderline but all readings for the baby were good.  If the new blood tests show certain 'rises' she may have to be taken in and possibly induced (she is now 37 weeks and would probably welcome is being over and done with!!).  Anyway so far so good.  I have an overnight bag ready and waiting and she has several friends on standby to get her to the hospital if her hubby is at work.  Mind you she is still driving herself at present!!

    When we met our grandson at school (its only 10mins to his home) he told Grandad that he could meet us there as it was healthier to walk!!!  My hubby's face was a picture as he drove off and I walked the little tyke home!!

    Life's stresses seem to come and go but having the forum to offload certainly helped me to see things in perspective this week though I think my mood swings are more due to hormones than current circumstances.

    Sounds like your eldest having a great time during Freshers but will no doubt be looking forward to some home cooking.  Have a great weekend with the family and will catch up again soon.  All the best and look after yourself. Jules xx

  • Hi Everyone

    Sorry for group response but feeling a little jaded today. Just wanted to say a huge thanks for all your supportive words.  This forum continues to be an amazing community to be part of.

    I did go out with my daughter last night (my friend is still going out too when she can bless her and is determined to see this Christmas so we will fight alongside her and try and make it happen - its the least we can do considering (if needs be her husband is going to change the date of this Christmas in their home and they have already decorated with Christmas cheer and my friend says with no  more drugs she can enjoy a real drink!!!)).  Her resolve over the many years of this battle has been inspirational and amongst other things she even gained a teaching degree during treatment.   I wish I had half her strength whilst dealing with our own situation.  Hubby has a different character to my friend and perhaps that's why I am struggling when he could still be doing so much whilst he is stable.

    The pamper night was all in aid of different charities and we stayed a couple of hours.  My daughter had a mini facial and we both bought a few Christmassy bits and pieces.  It was held in a local social club so we also had drinks and mince pies and then she talked me into having a tarot reading.  Never done that before!!   My daughter went first (she has had readings in the past but was amazed at what she was told this time) and she had pre-warned me to offer no information so I sat with my 'impassive' face and 15 mins later was astounded at how accurate the reading was in relation to my life now (whether the future will hold true who knows - am still somewhat of a sceptic).

    Decided after being so good on my healthy eating this last 8 months I deserved a treat this morning whilst in town shopping, so fell victim to a croissant filled with mature cheddar - yummmmmmmmmmm.   Tonight we are out for a Thai meal (first restaurant meal for a while) so hoping hubby can enjoy himself with old friends.

    Once again thanks for all being on this forum.  Have a peaceful weekend and hope to chat again soon.  Jules xx

    PS 8/12  Had a lovely evening out last night with old group of friends (14 of us in the end!!). Wonderful company and the food was beautiful.  Hubby more at ease than I had seen for a while and think, just for once, he had left his sad thoughts behind.  He is now sleeping in as we have our grandson from around 10 a.m. and then the family here for dinner after they finish their Christmas shop.xx

  • Hi Jules,

    Glad you did go out and that you enjoyed yourself. Hope you are not feeling jaded today and that you enjoy your visit from you grandson and family today.

    Our elderly next door neighbour is going away next week for a few days on a turkey and tinsel outing. She told me her digital camera had packed up and asked me where I bought mine from as she wished to buy one to replace it. I told her I would have a look at hers for her. In the end I found it was one of the brand new batteries that was as flat as a pancake when I tried them on my battery tester. So she now has a camera to take with her. I have also given her a DVD slide show I've made up with a lot of photos of cute animals on it which runs for about 22 minutes which she enjoyed watching. Tomorrow afternoon we are taken Mrs B's brother and sister in law out to buy some tree lights as theirs have packed up. Neither of them can drive at the moment (he has the prostate cancer and sister in law has Meniere's disease which means she keeps losing her balance). I know they would do the same for us.

    I read that you have suffered a Jules-itus moment with the croissant. I don't feel so bad about my Brianitus now so thanks for writing that Jules. I couldn't go 8 months like you. You must have very strong will power. Our Waitrose has just nearly doubled in size so the risk of more things falling off shelves into our trolley has also doubled much to my wife disgust, I mean the trolley thing not the bigger shop. But they had placed my chestnut at a very low level this week so had to try my powers of levitation to get them into the trolley. This elderly lady looked quite awe-struck as this bag of nuts slowly became air-bourne and lifted up into our trolley. Don't worry Jules, it's just wishful thinking on my part.

    Hope you and your husband enjoy today's visit from your family. You are so right about this being an amazing community to be a part of and you are a  big part of it. I think it like anything in life, you get out of it what you put into it isn't it. Thank you for all the support you have give me and many others over the past months Jules.

    Take care, best wishes to you and your family, Brian,




  • Hi Brian

    Sorry for a bit of delay in responding but for some reason my e-mails are being blocked and I am getting rather frustrated trying to sort it!!  Am trying to keep up to date via browsing the site so hope I do not miss anything important!

    Hope your shopping trip with the in-laws went well(I am sure they will have really appreciated the help whilst being unable to drive themselves and I really must sort out our decorationsas we hope to get them up next weekend.  We have a real tree normally so may have to call our son to help me carry it home!

    Have to say I really enjoyed my dip back into 'Brianitus' but know for the good of  my cholesterol levels that I need to keep those 'naughty treats' for special occasions (will have another lapse over the Christmas as would not want to be a killjoy).  How annoying that  you are now having to get down lower to your treats at the supermarket (think you may need to have words to explain your predicament).

    Busy day with the eldest grandson yesterday, keeping him amused and slept well as a result.  My daughter and family enjoyed having a meal with us after their shopping trip and its always good to see them.  All being well will be going to the school to watch the 'Christmas assembly for his class on Friday (hubby will mind the baby - there is only 2 tickets per family).  He has a couple of lines to say as a narrator and told me what he has to say and seems to have  no nerves at all (think that comes with age!!).  They were due to be going to Wigan next weekend to see son in law's Dad but the family car is not working at the moment (he thankfully has a small company car for work but its no good for transport family especially with all the bits and bobs you need for a baby) so they may  not  be able to go.

    Hope you and MrsB are keeping as well as can be and hopefully will chat again soon.  Virtual hugs.Jules x

  • Hi Jules,

    Thanks for asking about Mrs B, who is keeping well at the moment. Talking about the Christmas decorations, Mrs B and I were talking about when we were young and how we used to have to either make or assemble a lot of the Christmas decorations ourselves (remember the strip of gummed paper we used to loop together to hang on the ceiling). We also don't get any Carol singers coming round anymore and I think thats a pity for it used to make it feel more like Christmas. 

    When I took my wife brother and his wife shopping yesterday, both of them and my wife were all using walking sticks, and they joked that I was the only fit one. I told them that it's due to my diet of nuts Tesco's had re-stocked on their chestnut so bought some more this morning. Brianitus is still alive, I promise you. The lady on Tesco's checkout said what are you going to do after Christmas when we have sold all of them, so I told her I will have to resort to buying the frozen ones from one of your competitors. Mrs B has told me quite firmly I have to go on a diet in the new year so hope she has found some medication for my Brianitus and if so that it tastes nice??????

    Our three grandchildren cant wait for Christmas to come. I expect your grandson is also looking forward to getting a visit from Santa.

    I hope your weekly visit to your mother has gone well and she is still in chatty mode and that she also approves of your latest purchases for her. It must be so hard to make conversation when she isn't responsive. When Mrs B's father was in the nursing home, we often had to buy things for him but whatever we got, it was never right for him and it got to the point where we dreaded him asking.

    Anyway I am rambling on again, please forgive me. Take care, best wishes, Brian.



  • Hi Brian

    Yes I do remember the homemade paper chains and my daughter still does them with our grandson to add to the pre-bought decorations that are now well and truly up in their flat.  Unfortunately their trip to see her husband's folks has had to be postponed as his car has given up and is off to the scrapyard tomorrow (not worth the cost of the repairs).  He has a small Skoda as a company car and as her car is also on its last legs they cannot chance a long journey.  Plans are afoot to scrap hers in the New Year and get a family car which they can both use (now know where any Christmas money they are lucky enough to get will be spent!!).

    Popped down to see Mum and sadly we are back in the doldrums with no interest in what is going on and backtracking on all the positivity of the last couple of weeks.  Still do not have to take the new top back to the shops - its now hanging in her wardrobe with the trousers.  I think a lot of what is going on in her mind  just now is due to the time of year - I have never known her enjoy Christmas and she just wants it done with.  We will of course visit just prior to being away for the festivitiies and leave her presents ready for 'Santa' to deliver (the staff set aside a 'present room' and everyone has a delivery on the 25th).  I will also take some shortbread down for the staff as they all enjoy biscuits with their coffee when they have breaks.  I was lucky to get a glimpse of the 'happy mum' for a while but its very hard going making conversation when there is no response.  Luckily I took down the latest baby photos for her to look at and the staff all gathered round too.  I have also sent a few cards on her behalf to some of her older friends as I am sure they will appreciate the contact (they all know her well so will understand the current situation).

    Glad you all managed  to get out (walking sticks too) and also that your wife is keeping well - long may that continue.  We are all plodding along much the same and I am just trying to get the energy to start the present wrapping (ours and Mums). Prefer to do it in one go and then pack it ready to travel!  Now that my daughter will only have a small car at Christmas we will be taking some of their 'baby luggage requirements' in ours and then transporting stuff back again. Just as well we have an estate and live close by (and spending Christmas at the same place ha ha).  Work is getting busier which certainly makes the time pass quickly.

    Today I had a message from my friend who still has some fight in her against this awful disease.  She wants a little get-together so am going round on Thursday evening for drinks and nibbles and a gossip (am praying this wont be the last time we can do this).  Think I will be taking lots of deep breaths - just feel I need to be strong for her and the family as her bravery deserves so much more.

    Now its me thats rambling - something else that is catching.  Take care and look after yourself.  Hugs  Jules x

  • Hi Jules,

    Hope you are OK.  Was sorry to read that your Mum seems to be back in the doldrums after a few positive weeks.  I expect you know her well though and that she'll hopefully come around to be positive again.  Hope you enjoy your evening with your friend tomorrow, she sounds incredibly brave and it is so sad.

    I remember the homemade paper chains too.  Have lovely memories of making them as a child and hanging them all around Mum and Dads house.   Take care.  Hope x

  • Hi Hope,

    Thanks for your kind thoughts.  Sadly I am pretty used to Mum's ups and downs and she really has no interest in this time of year (even when well).  She has always disliked Christmas and this probably has a bearing on her current spell of the 'blues' as she calls them.  The doctors are monitoring her medication just in case it needs topping up but generally it makes little difference and she is at least calm (just not interested).  The carehome has a wonderful array of activities over the next couple of weeks so if she wants to join in she can.    My parents were like chalk and cheese with Dad being the social animal and Mum keeping to herself and she always says I somehow managed to get more of Dad's genes!!!  Anyway did not have to take the jumper back to the shops (she still plans to dress for Christmas).

    Look after yourself Hope and despite the sadness in your heart I do hope you can enjoy getting away on holiday for some well deserved relaxation with your husband and the boys.  Virtual hugs are sent to you all.  Jules xx

  • Hi Jules,

    Last night we had our last meeting of our wood-club for this year with a slide show of photos someone had taken from all round the country. There were some absolutely beautifull sunrises/ sunsets. We had quite a few member pay up for 2014 allthough subs arent due until January. The new system that took me so long to write out last year is allready proving it was worth the effort, for it was so much quicker and easier last night.

    I bet in one sense you are looking forward to meeting your friend tonight allthough it must be tinged with sadness at the same time so imagining you having mixed emotions about thie evening. Hope it all goes well and you enjoy yourself.

    Last night was the night we have the grandchildren for dinner. I said hello young man to my youngest grandson and to my surprise he said hello granddad. So I asked him why he didnt say hello old man as usual and he replied thats because your not really old, you just middle old.I can always gaurantee he will put a smile on my face everytime I see him.

    Will think of you this evening, take care Brian.

  • Hi Brian

    Thanks for your kind thoughts.  You are right about my visit this evening - very mixed emotions but  no one can be absolutely sure of how long they  may have so she is still very much making the most of things at the moment.  Have a bottle of plonk to share and we will be catching up on all the family gossip (we first met when we were both expecting our first child) .  She has got to the end of one bucket list and says she needs to think of more stuff to do (so perhaps I can give her a few ideas!!!).  Her youngest son is hot-footing it back from Australia where he has been working (may actually be back by the time I get there this evening) which will definitely give her something extra to smile about.  Have a feeling it will be a lot harder when I leave than when I arrive.

    Hubby has been kept company all day today with the neighbours' cats and think they may understand each other better than I do  Anyhow Hubby was reasonably cheeful when I got home from work and providing I keep the conversation away from 'illness' topics he has been a little more relaxed. Could it be that slowly by surely he is adjusting to enforced retirement - time will tell.

    Glad you enjoyed the company of the grandchildren and  your 'cheeky chappy' sounded on good form.  Tomorrow our eldest grandson has his Christmas assembly and he is a Narrator and has learnt his lines (2 of them!!). All being well one of  us will go with my daughter to watch whilst the other is left holding the baby at home (as it will be feed time and no one wants a howling 8wk old in the hall!! - he is also due to have his first injections so pretty sure he will make himself heard!!!

    Have a lovely weekend and very pleased that the plans in place for the woodclub are helping it all run more smoothly for the 2014 membership - well done.  take care  Jules x

  • Hi Jules,

    Brother in law is having his scan today to see if the cancer had escaped from the prostate. He wont get results for a couple of weeks but like me when I was waiting for the results of my scans, I know what a worrying time it can be. My wife wont admit it to me, but she has been talking a lot about her childhood today and I'm pretty sure it's her way of worrying about her brother as he is the last close relative she has left from her side of the family.

    Int he last couple of weeks she has taken an interest in jig-saw puzzles so I bought her one from the garden centre and have just had one on those under-bed tabled arrive this week for her to do it on. It can be angled towards you and has a slightly lipped edge to stop anything sliding off the table. No doubt if she gets to a hard point, she will call on my help. It's something neither of us have done for years.

    On Wednesday, after having her meal with us, my granddaughter went to Brighton ice skating for the first time with the Adventures group she recently joined and had a great time. She asked if I had ever been and I told her no, if I had I would have spent most of the time on my rear end.

    I hope your husband's more cheerful mood continues as it must be a big relief for you. Hope you didn't drink to much of the plonk but more importantly that you and your friend had a lovely evening together.

    Have a relaxing and peaceful weekend best wishes, Brian

Reply
  • Hi Jules,

    Brother in law is having his scan today to see if the cancer had escaped from the prostate. He wont get results for a couple of weeks but like me when I was waiting for the results of my scans, I know what a worrying time it can be. My wife wont admit it to me, but she has been talking a lot about her childhood today and I'm pretty sure it's her way of worrying about her brother as he is the last close relative she has left from her side of the family.

    Int he last couple of weeks she has taken an interest in jig-saw puzzles so I bought her one from the garden centre and have just had one on those under-bed tabled arrive this week for her to do it on. It can be angled towards you and has a slightly lipped edge to stop anything sliding off the table. No doubt if she gets to a hard point, she will call on my help. It's something neither of us have done for years.

    On Wednesday, after having her meal with us, my granddaughter went to Brighton ice skating for the first time with the Adventures group she recently joined and had a great time. She asked if I had ever been and I told her no, if I had I would have spent most of the time on my rear end.

    I hope your husband's more cheerful mood continues as it must be a big relief for you. Hope you didn't drink to much of the plonk but more importantly that you and your friend had a lovely evening together.

    Have a relaxing and peaceful weekend best wishes, Brian

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