Thank you that is so reassuring, my mind keeps taking me to a worse case scenario that he will not be receptive to treatment, it is great to hear that albeit at a slower pace life is mostly normal 

xx

Hello Mrsjp

Like Lee and your husband Ive got incurable secondary cancer in bones and spine. Im receiving immunotherapy plus  Denosumab to help keep bones strong. 18 months since last surgery and have a good life with few side effects and managable pain levels. 2 fractures in my spine and shoulder from the cancer are healing. So yes there is hope dont give up and live each day as it comes.

Ed

Thanks Ed, I am slowly getting my head round things now the shock is subsiding, and feeling more optimistic that this is not the finale but episode 1 of a new season. I realise I have been trying to have someone say hey I’ve lived another 10+ years but the reality is treatment has only been there for about this duration and is becoming more defined.

Just going from its kidney cancer and contained operation date given and bingo your cured to a scan prior to ip to find in a month he has multiple lesions on his spine, op is cancelled and we are now at incurable.

can I ask what is it that I can do more than anything to help and support him

Hello again Mrsjp

Try to keep some normality and routine to your lives. support can just be continuing to show your love for him. Pursuing activities where for a brief moment you forget about cancer it can become all consuming at times. A day out somewhere nice, a holiday or just a few hours. Visit friends and relatives as their visits to you seem to drop off when youve got cancer. Ensure a good diet and get some excercise each day. Lee walks her dogs. I do a bit of gardening. There is support for you too, ask at the hospital, take up what your local groups offer. A few suggestions.

Ed

Hi Mrsjp like Farmer Ed says try to keep to your normal routine.  This gives you normality and control over things that you can do.  I find that exercise does help me and I enjoy my walking with the dogs, I have four.  \(mad I know).  I have found the cancer charity Penny Brohn very helpful for me.  They are based in Bristol but do lots of online courses.  I did one for four weeks, one day a week.  It was about nutrition, exercise, stress and things that can help when you have cancer.  Picked up lots of useful tips.  I do clinical hypnotherapy once a week on zoom with them and Tai Chi once a week too.  My husband is very supportive and you sound like you are too, which is great for us with cancer.  Lots of support on this forum and the Macmillan one too.  Big hugs.

Lee x

Hi Lee

Nice to see you still active on this forum and getting on well with your life. Im off for a week in Portugal before it gets too hot and while Im still able. Had a break from denosumab to get a wisdom tooth extracted and avoid possibility of nectosis of jaw. Life is good regardless of its current limitations. A big hug for you Lee

Ed

Hi Ed,  glad to hear from you.  Are you off to Tavira again?  We are going to Praia de Luz again.  Wanted to go to Croatia but it is very expensive.  Hope your tooth is better now.  Glad life is good for you after the recent stress and scans. We need these holidays to forget about things for a while.  Hugs.

Lee xx