In September 2024 my husband had an operation for a growth on the pituitary gland which the hospital said they were  99.9% sure would be benign unfortunately it to turned out to be a very rare cancer, when they operated they got as much of the cancer as possible but couldn’t get too close for nerves etc.  He was  transferred to an oncologist at the hospital they did MRI scan PET scan and CT scan  and found that in the 5 weeks from operation it had grown back quite big.  They arranged for 6 sessions of chemotherapy and 30 sessions of radiotherapy 5 days a week for 6 weeks.  7 months on he was feeling extremely tired to the extent he had to stay in bed he did not have the energy to do anything which is totally out of character for him as he is a strong positive person, we were told it could be the effects of the radiotherapy but I wasn’t sure because he was starting to feel bloated couldn’t eat properly lost weight then developed the hiccups which would not go away. The next scans he had was 18 January 2025 we seen oncologist on 9/2/25 and the news was bad he has now got secondary cancer 1 large tumour and 2 small  tumours on the liver and also another tumour on the back of the brain. The oncologist  said they could not operate and he couldn’t have chemo at the minute as he is not strong enough so he will give him some dexamethasone which will build his strength up and help with the symptoms he has, they would put a chemo plan in place in case he decides to go down that route. The oncologist said if he has chemo it will be tougher than last time but it might extend his life but he probably won’t have any quality of life but if he has the steroids it will give him quality of life, which is what my husband has decided on quality rather than quantity.  We have an appointment on the 25th February to see his the steroids are working. They are actually like a miracle drug as he has perked up and has more energy is brighter still has the hiccups which is not very nice.  He has started to get aches in his right leg and gets tired as the day goes on. He has not been told of life expectancy but we know this is a very aggressive cancer does anyone know if the will be able to give us a time frame as we want to apply for attendance allowance and we know the cancer is terminal but don’t know how long he has.

Has anyone else been in this position who could tell me what is to come.