Hi Michele321,

Welcome to Cancer Chat. I'm sure this must be an incredibly difficult situation and I hope you're getting on as OK as can be.

The uncertainty must be tough in terms of being unsure what to expect or potentially prepare for. I'm not sure what your husband's doctor / medical team have said so far in terms of next steps or what to expect, but hopefully they have been helpful and of course do keep in touch with them with any questions or concerns you have.

And in general do keep reaching out to others for support - whether it's talking to friends and family, or to organisations, or simply writing things down on the forum here.

Hopefully you'll get some more replies to your post here soon - my reply will give it a bit of a boost so a few more people should see it.

We're always here whenever you need it.

Wishing you all the best,

Ben
Cancer Chat Moderator

Hi Ben. Thanks so much for responding and with a very kind and thoughtful message too. We had a consultation with the Neuro oncologist today and he was very positive explaining that this 4-6 week period post radiotherapy is the worst for most. It was uplifting to learn that there should be some improvement soon. I do talk to friends and family but thought it would be good to get the perspective of others going through similar journeys even if everyone is completely different!  However I now realise it’s probably too specific for this cancer chat so I’ll leave it here. Thanks again for your support. 

Hi Michele, I’m on a similar journey with my husband. He was diagnosed with Glioblastoma in January 2024. It’s been a long road to get us where we are today. I understand the uncertainty, I struggle with it on a daily basis too. Some days are ok and my husband is relatively stable and others he’ll be so lethargic and unable to do anything. Unfortunately he used to be very active so the sudden change has been a huge adjustment for him. I try to take things day by day and not worry about the months to come as that makes me feel quite panicky. I’d be happy to chat about anything if you’d like to. I hope you have a good support system around you x

Awww thanks Lexy. You absolutely DO get it. Yes good days and scary worrying anxious days!  I hate the way so much was taken away from him so quickly. Yes my husband loved his sport and staying fit. Now he just doesn’t have the energy. Hopefully after today’s reassurance there will be some better months ahead. I will probably be in touch again. Hope you’re coping ok. Thank you very much for messaging.