Glioblastoma - Coping with the uncertainty of what's to come. As a carer I'm finding it increasingly stressful

My husband was diagnosed end October 2025 and had craniotomy within a few days. He completed radio/chemo on 14 January. Currently on a break before starting the 5/23 stronger chemo for 6 months. He has right side mobility deficits so can’t work, play sport or drive anymore. Good cognitive function just short term memory issues. As his carer, I now find the uncertainty of what to expect increasingly stressful. I’m usually quite calm and in control but this is a real test and I’m not sure how I’m going to cope with the anxiety and constant vigilance for the months to come. 

  • Hi Michele321,

    Welcome to Cancer Chat. I'm sure this must be an incredibly difficult situation and I hope you're getting on as OK as can be.

    The uncertainty must be tough in terms of being unsure what to expect or potentially prepare for. I'm not sure what your husband's doctor / medical team have said so far in terms of next steps or what to expect, but hopefully they have been helpful and of course do keep in touch with them with any questions or concerns you have.

    And in general do keep reaching out to others for support - whether it's talking to friends and family, or to organisations, or simply writing things down on the forum here.

    Hopefully you'll get some more replies to your post here soon - my reply will give it a bit of a boost so a few more people should see it.

    We're always here whenever you need it.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator