Mum’s cancer can’t be cured - I don’t know what to do

Hi, I’m 22 and my mother (59) has cancer in her digestive system that is incurable. She’s on a specific diet but will eventually lose the ability to digest food entirely, at that point she’ll be fed through total parenteral nutrition. By then, people tend to only live for about a year on average.

I have no idea what to do. My mother lives alone but I visit whenever I can, she’s divorced and my sister is bad at keeping in contact with us. My dad will help where he can but, being divorced, he’s obviously not as involved on the day to day.

I’m trying to help however I can, it’s just a very strange and terrifying time because it’s this future death that might not happen for years, or could suddenly happen within the next few months - nobody knows. I don’t know. I’m at uni but I can’t bring myself go - I live by myself with a friend, but I feel guilty staying there instead of being with mum. She’s as active and energetic as one can be with cancer at this point, and she tells me not to feel guilty and to keep living my life whilst seeing her when I want to, but I feel so lost and afraid of losing her and like I’m doing an awful job of being there for her if I’m not with her all the time.

I’m also terrified of what comes after; my family aren’t that tight-knit. I was always closest and most emotionally vulnerable with my mum. She’s always there for me, more than anyone else. I don’t know what I’m going to do without her.

Sorry for the long post, I suppose I should just say I’m asking for any advice on how to care for someone who’s dying but slowly? How to live through this time without crying every few hours? How to prepare myself? I don’t know. How to be a good son for her in her final years? Anything at all, really.

Any advice or shared stories would be appreciated. Thank you.

  • hello, i’m so sorry to hear about your mum. my grandad has just recently been diagnosed with lung cancer and has been told he has 6 months if he can’t put weight on. from what i’ve seen my mum doing (who is his full time carer) is to try help them feel as if they are not alone and that someone is always there - even if it’s a phone call a few times a day when you have time or popping into see them whenever you’re free. 

    with the crying, i don’t think there is anything to say to make you feel better. i’ve cried nearly every night since he has been diagnosed and it’s heartbreaking seeing him in this condition. what helps me sometimes is thinking of the memories we shared, whether that’s an experience we did when i was small or just taking him shopping even just spending time in his house with him. 

    i try not to think about what life would be without him, only due to it making me cry, but i know what he would want me to do. i just know that he would want my family to stay close and for us to not be sad. 

    until she loses the ability to eat try feed her as much as her digestive system can contain, invest in protein shakes and anything including protein and electrolytes. i know for my grandad he can get it on prescription, so talk to your GP or if your mum is entitled to a district nurse ask them what to do, and she should also have a palliative care team. 

    again, so sorry for you and your mum. and you will get through this tough time. <3

  • thank you for replying, im so sorry to hear about your grandad as well.

    i’ll definitely spend as much time as i can with mum, and call her when i can’t. recalling good memories is a nice idea, would definitely help when i’m afraid of the future without her, and i know she likes showing me her photos from when we were all younger.

    Its reassuring to hear i’m not the only one crying a lot, too.

    i’ve been trying to come up with meals i can prep for her that suit her new diet, getting GP advice would be a good idea on that front, thank you for mentioning it! and lots of protein and electrolytes, absolutely.

    it’s an awful time, truly, i’m sorry youre also going through it with your grandad. all we can do is keep going, you’re right, and thank you so much for your reply. you’ll get through this too <3

  • Hi .. I am so, so sorry to hear about your Mum, as a mum myself my heart is breaking for you, you are so young to be going through this awful time. My stepson has been given a terminal diagnosis too and we are all finding it difficult and all coping in different ways and yes crying a lot which is ok, it’s normal under the circumstances so don’t feel guilty about it.

    Your Mum will probably be worried about you too, I think if you can, please attend Uni and complete your degree as that will make her so proud. I am sure the Uni will support you and give you extensions if needed.

    Also try to visit your local Maggie's (you can pop in any time you don’t need an appointment) as they are a great support and will help you talk about your concerns. I do understand the initial walking in might be difficult for you but it’s really worth it to take that first step through the door.

    Most importantly I can see by your post that you are a very good son, the best in fact  .. you don’t ever need to worry yourself about that. Just try and get through one day at a time. I’m sorry I can’t help much but know I’m sending  you lots of love and hugs and will keep you in my thoughts. Try and have the best Christmas with your Mum ️ xxxxxxx

  • Hey

    Im so sorry to hear you're going through this with your mum. There's no sugar coating it. Its ***. My mum was diagnosed last year with stage 4 colon cancer and I get that awful feeling of the unknown whether it's going to drag out or will it be sudden and the fear that comes with that. I have a similar relationship with my mum, we're very close, she's my go to person for almost everything and I don't know how I'll be without her. Shes a year into treatment now but its stopped working and her cancer is progressing and shes more symptomatic. Its really hard to watch and its terrifying. I don't know if I can even give good advice but I totally get what you are saying. I get those bouts of crying a lot lately. I find I'd go through periods of feeling strong and ok and then wham I'll have a few days of being a mess. In the beginning I cried everyday and its a bit like that now again. I've found routine is super important for keeping going. For me it was making myself go to work and planning in the days I was off and could hang with my mum and what we would do together. She says the same thing to me..go live your life and I try my best to because knowing her she'd be annoyed at me for not. So Even on the days I wanted to pull the covers over my head I make myself get up and go. And it helps. I always feel better once im in work and interacting with people. If you can try and get into uni. Even if you say im just going to go to one lecture try and go. And if you can talk to friends and let them know what youre going through. I've found that helpful too just knowing someone knows. Mind yourself and let yourself cry. Its a release valve. Sending lots of love. I think its especially hard this year. 

    If its any help from a diet perspective my mum finds smoothies and soups really good especially on the days she finds it hard to eat and you can load them up with lots of goodies to make them full cards and protein. Also if she would speak to a dietician as well, maybe she already has but someone who specialises in cancer patients would be good. The Royal Marsden do a really good recipe book for cancer patients too. 

    Sending lots of love