Hi Cazzza, 

A very warm welcome to Cancer Chat and thank you for sharing your story. I am sorry to hear that you have been diagnosed with high grade undifferentiated pleomorphic sarcoma in your shoulder and I thought I would share with you the information we have on our website on soft tissue sarcoma cancers and I would also like to mention the charity Sarcoma UK which has more specific information on undifferentiated pleomorphic sarcoma including on treatment like surgery and radiotherapy. But as nothing replaces hearing from personal experiences, I hope that you will hear from others here who have had the same diagnosis and who have had the surgery before. You are right that no two cases are alike but as you rightly pointed out, it's always useful and interesting to get other members' insights into what their experience post surgery was like. It sounds like you have already browsed our forum for posts you might wish to respond to - all you need to do is type in relevant keywords in our forum search which is located at the top and reply to any you feel would be of interest to you. For example, I have found this thread on undifferentiated pleomorphic sarcoma by Porrk - though the post is a couple of years old, this member was at the time waiting for treatment and it would be interesting to find out how it all went and hear from their experience. There was also another member I noticed MomoLennon who posted this thread on their sarcoma diagnosis and even though they posted a while ago, this member not only had an undifferentiated pleomorphic sarcoma diagnosis but it was also located in their left shoulder blade so quite similar in location to where yours is. Feel free to respond to any thread that you feel you would like to engage with. 

You are right that when something is very rare, it can be even more of a struggle to find useful and detailed information or to connect with another person who has had the very same thing before and hopefully coming on this forum will help you get in touch with others who have had the same diagnosis before and have had treatment for it. I hope that they will pop by and say hello and that they will be happy to share their story with you. 

We also have a nurse helpline you can ring on this free number 0808 800 4040 - it is open Monday to Friday from 9am to 5pm and don't hesitate to give them a call if there is anything you want to talk through with them. 

Best of luck with the start of your treatment. I hope that it all goes well for you. 

Best wishes, 

Lucie, Cancer Chat Moderator