I have been diagnosed with high grade undifferentiated pleomorphic sarcoma in my shoulder.  I am currently having a course of  radiotherapy to be followed by surgery.  I am desperately looking for someone who has had similar surgery so that I can understand from their experience what life post surgery might look like.  Can anyone out there help me?  I totally understand that no two cases are alike.    

After browsing through some of the posts about sarcoma I totally agree with the comments about what feels like huge delays in diagnosis and treatment and the lack of information to help people understand what their journey may look like.  Rare shouldn’t mean there is no information.  It makes an already awful situation worse.