Sibling has lung cancer. Worried I can't fully look after her and that she'll refuse outside help

My sister was mum's main carer as she was local to her. I live a train journey away. While my sister was looking after mum she became ill and she too was diagnosed with lung cancer.  I know how my sister feels about outside support even though mum did not want to go into hospital. When mum was very ill  my sister did not want community nursing support. Before my sister's diagnosis she would tell me what  a strain it was on her but when I suggested nurse support she became angry and said that she wasn't interested in Macmillan nurse support or any other support for mum and that it should be family

 Due to my sister being unable to continue caring for mum, mum reluctantly accepted the support of the community nurse until mum died at her home less than six months ago.

My sister is currently able to manage without a carer but she is not well having undergone several different treatments for over a year. I am willing to stay at my sister's to look after her a week at a time. Im not sure who will look after my grandson when my daughter goes out to work and i would need to arrange for someone to feed my cat. I know I would need a week for my mental health to recover and then I could provide care for another week and so on. I don't know if my sister would accept help from a nurse or a carer. She may have to at some point. I feel guilty because I don't want to give up my life as it is to live and care for my sister for several reasons. I am retired so work wouldn't be a problem. At the moment my sister is managing on her own. My head is in a whirl. Maybe I should be looking into the possibilities of nursing support for the future. It's like 'mum' all over again.

A long term friend of mine suggested a get some medication off the g.p. to help with my mental health but surely the way I'm feeling now is "normal" under the circumstances. I haven't really got a question. I just wondered if anyone had any opinions on what I've said.

  • A very warm welcome to the forum Hotchocolat312 although I'm very sorry for your loss, and to hear that your sister also has lung cancer.

    This must be such a difficult time as you try to find a way to care for your sister whilst mourning the loss of your mum but I hope I hope it helps to know that our members are here for you Hotchocolat312, and I'm sure it won't be long until some of them stop by to offer their support and advice.

    You can find out more about the support at home that may be available to your sister on our website, but we also have a team of cancer nurses you can discuss this with on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all that they can to answer your questions and put your mind at ease about your current worries and concerns.

    It's important to take care of yourself at this time as well Hotchocolat312 so try not to feel guilty for how you are feeling. Be kind to yourself, and if you feel your mental health starts to get impacted at any point, don't hesitate to reach out to your GP and other mental health services. They are all there to help and support you at this challenging time.

    Kind regards,

    Steph, Cancer Chat Moderator

    • Thankyou Steph. I haven't been on the chat for a month and with prayers and meditation I am "keeping my head above water." This site is helping me alot as I read other peoples circumstances and think of what I could say to help them. Unfortunately my sister has just been told that she has a tumour in her bowel now. That sinking feeling in the pit of my stomache has returned but I am now preparing to stay at my sister's one or two weeks at a time. It's not come to me actually needing to do this yet. I'm shocked about this next tumour and very tearful although from the symptoms she has been describing to me, I feared the worst. Last time I visited her she had make-up 'plastered' over one side of her face in an attempt to hide swelling and a black eye she sustained when she fell, crashing into the door handle. She was also having pain in her shoulder which she thinks she renched during the fall.  She didn't report it to the nurse because she said she didn't want to have to wait on a hospital stretcher for hours. I am of a mind that if she doesn't want treatment of any kind then it's her choice but it is very difficult not to cry. She's always looked younger than me in the past and when we went out together she was always proud to tell people we were twins. When we went out for a coffee together she told the waitress we were twins. I nearly burst out crying. So I feel i'm back on the rolercoaster. I have decided I will respect my sister's wishes to refuse outside support but now I have a new thought that brings me some relief in that I can accept outside help to help me look after my sister. Just needed to 'vent' alittle. 
  • I'm really glad the support you're receiving from the community is helping you, although I'm really sorry to hear about the latest developments with your sister.

    I can't begin to imagine what you are going through but we are here for you and will continue to do all we can to support you.

    I forgot to say in my previous reply that there is a cancer charity called Maggie's that you can reach out to for support as well. They actually have walk in centres across the UK, so if you find there's one near you or where your sister lives, do feel free to pop in as you can connect with others who are also on this journey and receive further support and advice.

    Vent as much as you need Hotchocolat312, as that is what the forum is for and we are more than happy to listen.

    In the meantime, take each day as it comes and remember you are not alone.

    Kind regards,

    Steph, Cancer Chat Moderator

    • Thankyou so much. Will checkout Maggie's near me & near my sisters. I'm visiting my sister just for two days next week. Perhaps if I cry here it will save me from braking down in front of her. I don't know.