Struggling to cope. Mum has stage 4 cancer. Treatment stopped end of November but she's still here. Feeling so burnt out

Hi Everyone, 

My Mum has stage 4 triple negative breast cancer and stopped treatment at the end of November last year as it had stopped working. I wish her oncologist never said she'd be lucky to see Christmas because here we are nearly in the middle of Feb and she's still here. The emotional rollercoaster is mentally exhausting and draining and I'm burnt out. All I do is cry and struggle to function in normal day to day life and no longer look forward to anything. I've become such a deeply sad person and in such a dark place. 

Mum is now under palliative care and with a hospice but living at home dosed up on all sorts until the pain is unmanageable and she'll then move into the hospice. I feel selfish for feeling like I just can't carry on any longer. I don't want my beautiful Mum to go but I can't bear this stress and exhaustion. One min I think this is it, she's going down hill then the next she's quite bright and doing things like going out and about etc. She's only 56 and I genuinely never thought I'd be losing my Mum in my early 30s. We're so close, we're best friends and do everything together. 

I live on my own and don't drive and work a demanding full time job. Work have been brilliant up until a couple of days ago when I asked for a day off unpaid for the sake of my mental health and the response shocked me and said it's a stage now where I'd need to go on sick if I'm burnt out when all I felt i needed was 1 day to balance work and home as a preventative measure for burnout. The problem is, I don't want to go on sick because I don't know how much longer this will go on for. We get paid full for 30 days sick but I already used half last year so that gives me about 15 days. Not knowing how much longer this will be prolonged is causing so much stress and heart ache. Financially I can't afford to end up on SSP so I'm trying so hard to just push through work but this rejection really knocked me. 

To add to my stress further, work have known this to be ongoing since the end of November and they gave me extra time off (about 3 days) over Christmas because we were told she might not make Christmas. But she's very much still here and I'm at a stage of now worrying that work think I'm taking the Michael. Yesterday my Mum and I popped out to M&S and I bumped into someone from work which has further added to my stress that they must think I'm making things up. I don't know, it's so hard to explain and I'm so stressed about things to do with work that I shouldn't be stressing about. I feel I could do with going on sick but again, what if this nightmare is prolonged much longer still because no one has a crystal ball? I'm just completely lost. 

Parents
  • Hi Strawberrybear 

    I hear you my mum died 30 years ago i was same age as you .....it is so hard what you are going through big .hugs

    Lots of good advice already so im going to focus on money as its the last thing you need to be worrying about .....have you claimed pip for your mum? If not do it now Macmillisn support services filled in forms and got it all sorted pdq dor my hubby who is also palliative care. Worth a phone call 

    This might help with things mum needs lije enjoying time with you at MS ( coffee and cake included) 

    Take the sick time off and ask for flexi working hours to help you 

    and ask Macmillian to help you too( they sorted finance things for me too)

    Meanwhile my dear Strawberrybear enjoy every precious moment with your Mum take photos record videos audio 

    The quiet moments the light moments these will be  amongst  your most treasured things in future  

    You are a lovely daughter to care so much

    Take care of yourself 

    Sending strength to you both

    RB

  • Hello, Thank you so much for your kind words, it means a lot :) 

    And sorry for the slow response on here. Unfortunately my beautiful Mum passed away just over 2 months ago. I did everything I could to make the time special and create memories. I miss her so much but somehow have to find the strength to keep going :( x

Reply Children
  • I am so sorry to hear your Mum has passed away it is such a hard place to be especially right now when it is all new and raw. You must have been a great comfort to your Mum.

    Take one day at a time sounds so cliche but it really is true ...be kind to yourself.

    Sending love

    RB

  • Thank you so much for your kind words, it really means a lot. 

    I definitely feel like nothing prepares you for this. My mental health is truly in the gutter and I'm having to just go an hour at a time. 

    It's the most painful thing to go through. Thank you again <3

  • Hi StrawberryBear

    It is a massive loss losing your Mum and especially at a young age.

    Have you spoken to anyone / have any professional support to help you as you grieve....

    Dont struggle alone ..... sending strength RB

  • Hi Rhubarbdragon,

    Yes I see a therapist every week or every other week and I'm also on a waiting list for counselling at the hospice where my Mum passed away. They said it's around a 3-4 week wait (this was last week they said this) and they're checking in via phone call in the mean time which is so good of them.

    It's so hard though. That hour in therapy seems to go so fast and then I'm back out in the world alone with my thoughts again :( There's no one I'm close to like my Mum, she was my person so as grim as it sounds I feel like I'm literally just existing right now but doing my best. Thank you for the well wishes :)

  • Hello Strawberry Bear

    I am glad you have some support 

    I used to write letters to my Mum and it helped just to get things out and later just to share stuff...of course everyone is different ...

    Remember you always have your mum with you in your heart and memories

    you will find ways that are meaningful for you to honour your Mum and one day you will smile and know that your Mum would be glad you did.

    Keep going Strawberry Bear

    Kind wishes RB