Hello again, I’ve been absent from this forum for a long time as I found that there are other forums that are better suited for blood cancers. So time for an update on my partner. He’s been getting chemotherapy for his CMML and will soon start his 7th round of Azacitidine, he has been offered a bone marrow transplant and has a match but I don’t think he’s going to have this after being frightened off it. I’m clinging to the hope that the chemotherapy will suppress his cancer for as long as possible but he is symptomatic and has regular blood in his snot and has had some nose bleeds. His bone marrow is not producing platelets and he is having platelet transfusions weekly as his platelet count drops as low as 4. He was put on a very expensive medication that the doctor hoped would help him to produce more of his own platelets but it didn’t work.
it’s now time that he had another bone marrow biopsy in my opinion as we need to know what his blast count is now, if it’s going up he needs to get the bone marrow transplant as we were told it’s the only possible cure for CMML. If not he will possibly be sealing his own fate and I’m terrified of that happening.
he has said that he will fight this war but he’s taking the easiest options.
