Options please

My husband has cmml leukaemia, was told 5 years ago he only had 2 years ! His been having azacitade chemo injections for 4 years, now his kidneys are playing up Dr wants another bone marrow number 7 ? Why I feel like he is a Guinea pig , they can’t cue him and we live a well balanced life ! Why cause more upset as the last bone marrow was unreal awful ! His 69 says he feels fine ! I don’t agree with putting him through more tests anyone here in same situation?? I know it’s his body but I’m not happy the way hospital have gone about his treatment 

many thoughts please ? 

  • Hello Duckpondgirl

    I'm sorry to hear about your husband's diagnosis and that the hospital is recommending another bone marrow biopsy. It's understandable that you both have concerns about why another biopsy is necessary. 

    If your husband doesn't want to go through with the procedure then do encourage him to talk with his Consultant about this. It is of course his choice whether he chooses to accept this or not. 

    If you're struggling with the way your husband's treatment has been carried out then your husband may want to think about getting in touch with the hospital PALS team for some advice and support. It's their role to support patients with health-related questions as well as to help resolve concerns or problems when you're using the NHS. 

    I do hope that your husband is able to come to an agreement with the team responsible for his care about the best way forwards and that you feel he is being well-supported in his choices. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you , he just dose as his told this is number 7 bone marrow, it’s his body but I do think the team rail road cancer patients! Maybe just me I do t know !