My (26F) Dad (72M) has throat cancer. On 3rd week radiotherapy and struggling. Just want to talk to someone who understands

Hi. 

My Dad has throat cancer and is on his 3rd out of 7 weeks radiotherapy. He has a feeding tube fitted and is starting to use this more, mostly with Fortisip drinks

Generally he isn't eating or drinking as much as he should and I'm worried this is going to get worse. He said he doesn't want to eat or drink because he can't taste anything so doesn't enjoy it, can't eat most things because of the pain in his mouth and throat and he said some things even taste rotten (e.g flavoured water). No matter how much I or my little brother encourage him, he is reluctant to eat/drink very much. I'm worried this will get worse - there's over 4 more weeks to go and I know the side effects will continue to build.

This week he's starting to cough a lot and is struggling with throwing up mucus. When this happens he becomes really distressed. 

He also thinks he's going to die and I'm finding that really hard. He keeps pulling me aside to tell me important information as if he only has days to live. I keep trying to remind him that his prognosis is positive (oncologist said intention is to cure his cancer) and that he'll get through it but he's understandably so low.

I'm personally really drained and feeling a lot of pressure (along with my little brother) because wider family haven't been making very much effort. It's hard not to feel resentment over that. I'm trying to juggle work and care for my Dad, alongside processing all of this. Sorry this is a lot of word vomit. 

Does anyone have any advice? I want him to know he can and will get through this. I want to know that we'll all get through it together. 

Parents
  • Hi 

    I just read your post identify a lot with what you've said. My Dad has oesophagus cancer and had a stent fitted 3 weeks ago. Its only treatment to help with symptoms he cant have chemo as not strong enough. So your Dads prognoisis sounds something to work towards. My Dad wasn't eating much before the stent and has little appetite now even though dietician we saw last week said he must eat even if he doesn't feel like it through the day. I've been trying to help to pick out things for him to try to eat. He's also on the drinks too.  So maybe ask to see dietician if you havent had access to one before, see if that helps with suggestions. He lives on his own so fiercely independent which is proving challenging and I'm trying my best to negotiate and listen but sometimes it gets a little heated. 

    I'm also juggling a job and it's hard when you've been to an appointment to put on a brave face to carry on with things to.look normal. I didnt feel well after the bank holiday i think id been running on adrenaline for the last 2 months so a day or two down time my body just crashed. Work have been OK up to now flexible make up time if I'm out for part of the day etc. I just feel like it's not real some days and never any spare time.  Your definitely not alone with what your going through. 

Reply
  • Hi 

    I just read your post identify a lot with what you've said. My Dad has oesophagus cancer and had a stent fitted 3 weeks ago. Its only treatment to help with symptoms he cant have chemo as not strong enough. So your Dads prognoisis sounds something to work towards. My Dad wasn't eating much before the stent and has little appetite now even though dietician we saw last week said he must eat even if he doesn't feel like it through the day. I've been trying to help to pick out things for him to try to eat. He's also on the drinks too.  So maybe ask to see dietician if you havent had access to one before, see if that helps with suggestions. He lives on his own so fiercely independent which is proving challenging and I'm trying my best to negotiate and listen but sometimes it gets a little heated. 

    I'm also juggling a job and it's hard when you've been to an appointment to put on a brave face to carry on with things to.look normal. I didnt feel well after the bank holiday i think id been running on adrenaline for the last 2 months so a day or two down time my body just crashed. Work have been OK up to now flexible make up time if I'm out for part of the day etc. I just feel like it's not real some days and never any spare time.  Your definitely not alone with what your going through. 

Children
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