Living life on the edge

My husband has incurable prostate cancer. Diagnosed two years ago, he remains relatively well although as time goes on he is definitely more fatigued. 
He has blood tests every four weeks to check to see if his cancer is reactivated. Although we know the day will come when his treatment fails it is still very difficult waiting for the call from oncology every month. 
To compound the stress, his mother who is 95 is in a care home. Bed bound now for 8 months, dying from dementia, can be extremely agitated at times so is heavily sedated. Doesn’t really know who we are and mostly sleeps through the day and night. It is extremely distressing watching her fade away so slowly. 
Two months ago I developed bilateral pulmonary emboli and have just begun my own healing journey. Terrified I clot again, but told it could take between 3 months and a year for me to recover. I feel so guilty that I’m struggling to care for my husband or have empathy for my mother in law. 
At times like now, I feel very lost and hopeless. I have no idea what the future will hold. 

  • Hi Maisiem00 and welcome to the forum. I am so sorry to hear about your mother in law, It's a cruel way for anyone to end their days and naturally It must be very distressing, Understand your worries with PE, having heart problems can really limit what you are able to do and it can be worrying thinking about what could happen, though as i have a few serious lifelong heart issues myself I have found stress and worrying is no good for the heart, which i can appreciate is difficult for you with everything going on in your life, though the anticoagulants should mean no more PEs. Like your husband I have terminal PCa spread to 8 places diagnosed May 2022, treatment limited due to heart issues so on HT and regular PSA tests, like your husband i too feel ok, though tired, saw my oncologist this week, she gave me 5 more years. Don't be so hard on yourself your in a very difficult situation trying to care for others while looking after your own health, No one knows what the future holds, though i wish you well with yours, take care.

    Eddie

  • Thank you so much for taking time to reply and simply for acknowledging the challenges we’re facing at the moment. 
    I know there is no magic solution, but it s good to be able to express how I feel. It’s so very difficult holding it all together 

  • Hi Maisie, I go to a cancer charity called Maggies for emotional support and a lot more, and can't thank them enough for all they do for me, they are open to anyone affected by cancer and that includes family members, just pop in, no appointment needed, 9am to 5pm weekdays, would recommend them to everyone. www.maggies.org take care, and if i can help in any way, just ask. Eddie

  • Hi Eddiel, thanks. Unfortunately the nearest Maggie’s is over 20 miles from home. So not easy to get to. 
    Thank you for your caring response though. Good days and not so good days. Today I’m working on gratitude.

  • Sorry Maggies is too far, wishing you many good days,

    Eddie