A very warm welcome to the forum Enjaydee although I'm so sorry to read your post.

I can't begin to imagine how upsetting and frustrating this must be for you when all you want to do is provide the best care possible for your mum.

We do have some information about other services and support that may be available to you and your mum at this time, but for further information and advice, please give our cancer nurses a call. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and they will do all they can to help.

You are not alone Enjaydee. We are thinking of you and sending all our strength and support your way.

Kind regards,

Steph, Cancer Chat Moderator

Hi, my dad was diagnosed with a glioblastoma November 2023. I expected that I would have to move in with him but the Macmillan care support worker said that it was too much for me to cope with and gave us the choice of 24 hour carers at home or a nursing home.

This is being fully funded by our council, even though my dad has over the amount in savings that would normally cut off funding. It is because he is terminal.

He is now in a nursing home just a few miles from us and has 24 hour medical care. I had been so stressed wondering how I was going to cope.

The nursing home is providing incredible care.

It is obvious you are not getting the support from Macmillan that I have received but perhaps you could contact your council and discuss with them.

He did not have to have an assessment and funding from the council was authorised in just a few hours.

If you are not getting a positive response from them, I would take her into emergency care and say she has to be admitted, she can not live alone and you cannot provide the care she needs. Tell them it is not safe for her to be left alone.  I told them I was exhausted and couldn't cope and they admitted him immediately. I took him to same day emergency care (SDEC) rather than A & E as we received better treatment there.

The Macmillan coordinator told me that they are so desperate for beds in the hospital, they will sign the funding. Your mum has a terminal illness and deserves dignity and care. it will make the time she has left so much easier for her and you. I was absolutely exhausted before dad went into the home but he is happy there and we can now spend the last few months  enjoying each others company.

I hope this helps you in some way. Jane.