Hello
I'm sure I'm not the only person feeling this way, but have any of you experienced or are experiencing that feeling of helplessness whilst caring for your loved one
Yesterday my husband gathered the strength to spend time on the sofa for a few hours to try to celebrate his 50th birthday with myself, his son and his parents. Today the oncologist advised he has only a few months remaining.
Whilst it was clear he was on this pathway following significant progression, hospital admissions and numerous visits from the hospice at home team, he still had hope that there would still be some cutting edge treatment to keep him here longer.
Today that changed, I saw the realisation that his fight was weakening and hope reducing. Discussions around DNR being futile as advised by the oncologist and respect forms needing to be updated to reflect.
Today I felt like I lost a part of my husband, like something in my heart shifted, it broke. The realisation that he would be leaving us in the not so distant future. No matter what words I tried to find, I could bring him no comfort.
I have felt for many weeks that regardless of the practical things I support him with, it just never feels like enough. He asks me questions about what it's going to feel like, will he be in pain and I'm unable to give him the answers he seeks. I try to bring reassurance but again, my words do not cut it.
How best do I navigate this stage? How best can I support him?
He's already maintained he wants to die at home.
Thank you for listening
Emma