The simple answer is, how long is a piece of string?

There's a ton of folk here with years under their belt, there's folk reaching and surpassed a decade. Kinda depends on how well they're responding to treatment and general health. Probably the best person to ask for a guesstimate would be the treating doctor.

I know how difficult it is. But beware the Macmillan nurses. We were put in touch with them about side effect pain. Got a phone call and they said this wasnt their field (fair enough ) Then she said do you want me to come and talk to you about the future (she meant when you die) She spoke to myself and husband like we were 2 year old or had dementia (Aw bless, and what do you like to be called.) I cannot tell you how angry it made me. We are not stupid we know the situation, being spoken to like this doesnt help.

I wish you all the best for the future. I suppose all we can try and do is live one day at a time. Easier said than done.

Thanks we had a bad experience with Macmillan too. They kept asking what we wanted and we kept saying for mum to be at home then a couple of days later they’d come and ask the same thing again, no one  acted or actually passed on the information . Needless tO say she died in the hospital :( now having to watch partner go throu it too, life sucks 

So sorry to hear about mum. Hope you and your partner have many more years. x