End of life - how do you know when? Bladder Cancer

Hi everyone

im caring for my brother who has incurable bladder cancer stage 4.

He had two rounds of chemo but as his health got worse (his kidneys were effected by chemo) the doctor advised they were not going to proceed with chemo and that my brother only had a few weeks left to live. 

he has been home for almost 3 weeks now and has done amazing he has a lot of blood clots with a stent added and now has bags on to drain his kidneys. Since coming home his legs have stopped swelling and have completely gone down (sometimes swell but will come down within a few hours) 

so his oncologist said the swelling in his legs wouldn’t come down unless chemo worked as it would reduce the tumour size but hes been on certain medication that weve tried and now swelling in his legs have massively reduced? From this I had high hope thats a miracle has happened and the medication we are given him is working!? 

my questions are, how will we know its end of life? 

my brother has never been sick, hes had a good appetite throughout chemo. 
he sometimes loses his appetite now but will regain it after an hour or so 

he eats good

he drinks water all the time (3/4 jugs a day) 

hes now:

drowsy

slurring his speech

loses concentration often 

sleeps more often but not for long hours of the day 

pain when peeing again

  • Hi Moonlight121,

    I'm sorry to hear of the situation with your brother and also that you haven't received a reply up to now. I can certainly understand your questions and wanting to find this information out.

    It would be difficult for me to advise and really it would be best to talk things through with your brother's doctor/specialist as soon as you can - they will be best placed to help with your questions.

    You are also welcome to give our nurses a call if you would like to talk things through at all. You can reach them on 0808 800 4040 - Monday-Friday, 9-5.

    And of course if others here have any advice or similar experience to share then hopefully they'll be along soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Moonlight121,

    I’m so sorry to hear about your brothers situation and can really relate to the unknowing feeling of when they will pass. It is a very unsettling time for you all. My mum is currently on end of life care with stage 4 bowel cancer. 
    I would agree with Ben about contacting specialist or if you have MacMillan team involved for more answers. I know they can’t really give specifics but they can share some guidelines on what to look out for and help discuss things with you. 

    It is an incredibly difficult time, I hope you are able to soak up as much time with your brother. Being kind to yourself on the bad days and celebrating the good. Take care x