Unexpected diagnosis lung cancer

Good morning everyone 

This is my first time.e posting and first ever experience dealing with cancer in the family .

I took my mum to a respiratory appointment yesterday for what we thought was a follow up after an endoscopy for something completely unrelated to be told that after one of her scans they have found a tumor in the lower part of her lung .she is 77yrs old and to say we are shocked and devastated is an understatement.  The doc has arranged for her to get a biopsy.of the lymph node in her neck and a full spinal scan is this a normal procedure for diagnosis???.

 He said although formal diagnosis hasn't yet.been made they are 99% sure already that this is lung cancer and the biopsy is to find out what type it is  ... I think thats what they said and the spinal scan to see if its spread as they see something in her lower spine I'm a bit confused as it was a complete bombardment of information from him and the lovely oncology nurse we spoke to straight after .

She was trying to explain everything but it just didn't sink in at the time so this is where we are 

Appointment , scan , biopsy do these take long to get the results and what comes next ? Any info or advise in how to help her digest all this would be very much appreciated 

Thank you 

 

  • Hi

    I'm not a doctor or nurse but do have lung cancer. It is correct that they will need a biopsy to establish which type of cancer it is, there are diffent types and they have different treatments so this is the right path.

    If there is possibly something on the spine again they need to see if thats related, again this is the right path to take.

    The tests should be done over the next week or two. There may also be other tests such as PET scan, brain scan and lung function tests, once all done all the results will be discussed at MDT (multi disciplinary team) thats where they all sit round the table and discuss what your mum has and what treatment is available for her, any other health conditions she has, her general health etc will also form part of that decision making.

    Once all this is established you'll get an appointment to go in and see what they reccomend and can do for her.

    I hope this helps.

     

    Keep strong, it's a tough time waiting.

    Xx

  • Very helpful thank you so much for the Info she got her appointment today for her biopsy ,I know it's going to be a waiting game for the next few weeks so just 2 day at a time I guess xx

  • Hi,

    My mum was diagnosed in Oct 22 for lung cancer and treatment started within weeks of biopsies and scans. Take notes and write down any questions you have. 
     

    Unfortunately for my mum it was well advanced (bone tumour on L1 - which could be why they may want to scan your mum) and it's currently not responding to any chemo so we are now doing palliative care. There are so many options out there and it's definitely worth keeping in touch with the cancer nurse - they are very good at decoding what the consultant says. 
     

    I have found these chats really supportive as, as a daughter and carer it is so overwhelming and lonely sometimes. I'm always here if you need to talk. 

  • Thank you so much I've been reading some messages and found the support ev1 is giving here is amazing I will definatly keep in touch .I'm sorry to here about your ms prognosis and my thoughts are with you .x May I ask how old your mum is? As I think this is a big negative for my mum being 77 and loosing so much weight in the last 2 months i do worry whetherr she is strong enought to cope with whats to come xx

  • My mum turns 60 in a couple of weeks so still rather young! Yes the weight things shocks me too. My mum has always been slim but now she is so skinny it's alarming to see. 

  • Mum had her mri  scan on Friday just gone she has a 3.5 by 5 cm tumour in her lung and a few spots seen on her spine  . we already have an appointment for a meeting with the consultant and nurses on thursday and she hasn't even had her biopsy yet ... this can't be good ?

  • Hi

    That's a big tumour but don't go into panic mode, I had a much bigger one they managed to remove  however i was much younger (56) and was reasonably fit with no other medical conditions.

    My team were quick, it's possible they want to get her started on something and not necessarily bad news.

    I can't tell you what they'll say. Take a deep breath, go to the appointment and write down what they say as it's so easy to forget with your thoughts being all over the place.

    In the meantime if you need a shoulder ...... i have two you can lean on anytime.

    Xxxx

     

  • Thank.you so much for your support and advise it's very much appreciated latest update is it has been confirmed  it has spread to her spine and looks like she has some spinal compression will be starting radiotherapy asap 

    We are keeping her spirits up although it is very hard as we are seeing differences in her health from day to day but hey positive thinking just taking 1 day at a time 

  • Hi

    Thanks for the update,  it's good to hear she has a treatment plan in place and quickly at that.

    I've not had radiotherapy so can't really offer any advice on that for you, very best of luck with it though.

    Feel free to message if you need that shoulder at any time.

    Love hugs and strength to you and your mum.

     

    Xx