Son's biopsy results still not back, what can we do?

My son's biopsy results following a colonoscopy then taken during an emergency colostomy from several places in the tumour have both been very slow (more than 2 week) and come back  'inconclusive'. His team were keen to do chemotherapy before removing his tumour, but he was so ill and the tumour growing so fast, they went ahead and removed the tumour (and most of his colon and inflamed lymph nodes.) They also converted his colostomy to an illiostomy at the same time. All tissues removed were sent off to be analysed. More than 2 weeks again, still no results. 

We are beside ourselves with fear, this has been such a fast growing tumour yet they can't tell us what it is, and chemotherapy can't start until they know what needs to be attacked chemically.

What should we do? Is this lack of funding? Shortage of staff? If they come back inconclusive AGAIN, what can we / should we do?

  • Hello Dorsetbelle

    I'm so sorry to hear about all that your Son, and you as a family, have been through recently. Undoubtedly this is a difficult time for you all and understandable that you're feeling anxious and frustrated. 

    We know that many people have been waiting longer for urgent biopsy results since Covid and this is for a multitude of reasons but obviously it doesn't help your son's situation. Complicated with the fact that the biopsy results he's had so far have all been inconclusive, things may take a little longer whilst the specialists confer on his case and try to decide the best way forwards. If he's still had no update from the hospital then do get in touch with the PALS team who are there to help resolve concerns and problems. 

    In the meantime, I wonder if you might find it helpful to chat things through with on of our team of nurses. I'm sure they will be happy to offer any advice, information, and support they can. If you'd like to talk with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    I do hope that he has some news soon and that the next phase of his treatment can commence. Keep in touch Dorsetbelle and let us know how you're all getting on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator