where is the support for those trying to help?

Hello community

I am caring for someone at stage 4, - at least I'm trying to.  

They aren't the easiest of people to talk to at the best of times. As a consequence I seem to be the only person wiling to be there, but I am having to insist, and I am beginning to resent it.

I'm questioning whether I should be insisting.  My fear is that without a friend, they'd be alone, single parent, only 50, pushed all their friends away through life.  The NHS is understaffed, and there doesn't seem to be support for people who have the final diagnosis. 

Or am I just looking in the wrong place?  

Can anyone point me in the direction of help for me, and their children (they are legally adults, but just finised A' levels and at Uni, so fully dependant and I think they expect someone somewhere to point them in the right direction at least.... )?

I was hoping to find some counselling support for the children of people dying, but maybe I just can't see it for looking.

Best wishes to all that post on here. Life's not fair. But living is a gift.

 

  • Hi so sorry about you doing caring on your own, mackmillen or Marie curie should help with care or give information for you. Adult social care or social services should help with caring but might take a while to get started. 

    Hope this helps. 

    Billy 

  • having tech nightmare

    v quick post. Riprap charity helps teenagers with parents with cancer and their support directory also signposts to other services in any given area

    http://www.riprap.org.uk

  • Hello and welcome to our friendly forum.  There is help there for them they will have been given dedicated McMillan nurses when diagnosed and they can help enormously.  Also if they are at end of life then the surgery should be able to help as well, for instance you can be red flagged on the Com when you telephone them so you don't have to go through distressing questions every time you need help.  There is also a palliative care team allocated at end of life to assist them, district nurses work 25/7 so they can help as well.  The problem is that if they don't want help then you can't help them as it goes back to patient confidentiality, so you need to become involved in a more considered way by asking their permission to act on their behalf.  Hope that you manage to get somewhere by doing this.  Carol