Testicular cancer

Hello

my son was diagnosed with testicular cancer 3 months ago has successfully had surgery and offered 1 cycle of chemotherapy to lower the 40% chance of it returning... this is where it gets complicated my son has asd and the fear of chemo substances  going into his body is preventing him from having chemo to the point where he doesn't want chemotherapy. Which of course is his right as he is 22 but now they have said his blood markers are raising again and needs another ct more blood tests. Has anyone had any sort of experience with anything related to my son's situation any advice would be appreciated right now.they are working with him with councilling/psychiatrist but his fear is winning

many thanks xx

Parents
  • Hi Micherog,

    I'm sorry your son is going through this. My husband had the operation where the cancerous testicle was removed and he didn't need any follow up treatment. This was pre covid. We have since then had another child. We were fine until Jan this year and one of his blood test results showed raised markers. The cancer has returned as a retro perineal  type if I'm not mistaken. He has just finished his carboplstin treatment of 3 sessions. One of the tumours have gone the other significantly reduced. We will have to keep getting monitored as there's always a risk. We missed on routine check ups due to covid and it grew. This is our experience. Chemo is difficult however this is a responsive type and successful outcomes. It is also a lot on my husband. He has withdrawn to himself and became more angry. We have 1 young child and one baby. To answer your question. I wish we had done a treatment earlier to not be here at all. But no one wants this and it happens. And it happened to us too. Better than some and luckier than the others. We have to support our loved ones in their decisions as it is so tough for them. Sorry for rambling on. 

Reply
  • Hi Micherog,

    I'm sorry your son is going through this. My husband had the operation where the cancerous testicle was removed and he didn't need any follow up treatment. This was pre covid. We have since then had another child. We were fine until Jan this year and one of his blood test results showed raised markers. The cancer has returned as a retro perineal  type if I'm not mistaken. He has just finished his carboplstin treatment of 3 sessions. One of the tumours have gone the other significantly reduced. We will have to keep getting monitored as there's always a risk. We missed on routine check ups due to covid and it grew. This is our experience. Chemo is difficult however this is a responsive type and successful outcomes. It is also a lot on my husband. He has withdrawn to himself and became more angry. We have 1 young child and one baby. To answer your question. I wish we had done a treatment earlier to not be here at all. But no one wants this and it happens. And it happened to us too. Better than some and luckier than the others. We have to support our loved ones in their decisions as it is so tough for them. Sorry for rambling on. 

Children
  • Hi Touba,

    I know this is an old thread but I just wanted to see how your husband is getting on? We are going through a similar thing and wanted to reach out to someone who understands. My husband had testicular cancer 2 years ago, had surgery to remove the testicle and one round of chemo. He’s now got similar symptoms and fears the cancer has returned in other testicle (CT scan tomorrow) I’m wondering how common it is to have both testicles removed.

    Did your husband have the same type of cancer 2nd time round? 

  • Hi there,

    we recently have had an out of routine CT scan as my husband was also feeling really tired and some symptoms but thankfully it’s come out clear. It has been a stressful few weeks leading up to receiving the results. So my husband has had the second as a different kind , it was said to be stage 4 which scared us to bits initially but the drs reassured us that’s the stage because the rumours were located elsewhere other than the testicles. It was in his abdominal region. The chemo is obviously still active as the tumours are still shrinking. I hope you have good news too. Please feel free to continue chat. I haven’t been here a while but receive updates from email. So will look out for it. Hopefully it’s nothing and all is in the clear. 

  • Hey hope you’re al doing well. I hope you have good results from the scan. Thinking of you