Memory loss from high grade glioma

Hi there

My sister was diagnosed with a high grade right frontal glioma on the 11th March 2022 without any warning at all, she had just been a bit distracted/vacant for 2 weeks prior and had 2 dizzy/fainting spells. She is 49. Due to the extend of the tumor no treatment has been offered and she is now in a hospice. We are really confused by her symptons and are keen to know if anyone else has experienced what we are seeing and going through? She is currently only on steriods and a couple of other things to make her comfortable.

She is weak and tired some days she is asleep others she is awake. She isn't in pain. She can talk but doesn't, other than a few words, she has no memory but seems to know us, she eats and drinks sometimes feeds herself.

Even when diagnosed she never once talked about it or showed any emotion. We know she is very sick and the end is likely to be near but everyday we do not know what to expect. Has anyone else experienced anything similar?

Thanks

  • Hi there,

    I'm no expert but I had a friend who had a front lobal glioma. The symptoms she had prior to diagnosis, exactly as you describe but the tumour was spotted by her optician. She had surgery to remove the tumour but wasn't well enough for the follow up radiotherapy and it grew back very quickly. She lived around 6 weeks after diagnosis and in the end she became more and more sleepy before being totally unconscious for the last few days. I'm sorry to read about your sister, she is far too young and it's so sad. Be assured the hospice will ensure she is not in discomfort and the end will be peaceful. 

    Thinking of you xx

     

  • Thank you for the reply! There is so little information out there.