Hi,
My husband is wonderful man and he is the best that happen in my life. He is 54 and was diagnosed with laryngeal cancer in 2020. It was T2, almost T3. Had chemo and radio that he finished in end of November 2020. All looked good until his voice changed again after 6 month and after revision we were told the cancer is back. In 2 weeks he had scans and had salvage laryngectomy with multiple complications. He spent 2 month in hospital. Once discharged, after 2 weeks, we ran to ER due to bleeding, his yugular vein blow out. My dear husband spend another 2,5 months in hospital. Now it is 2 month he is at home and we manage all good together. He started lymphatic drainage massages as well to improve his quality of life. 2 weeks ago he started coughing and there was a discharge from his stoma and it smelled badly. Our GP gve antibiothics and we scheduled appoitnment with ENTs on Friday 28/01/22. All looked good, he had just like a little like pressure wound on the left side of the stoma. Next Monday, the holes were a little bigger with some bloody discharge. We kept it clean as told and were booked for ENTs on Friday 04/02/22, it was yesterday. When ENT saw the wound he was in shock and immediately did biopsy and scheduled PET scan for us. We all know what that means. I am very scared and spend all day researching what options we have. My husband and we thought and believed it was just an infection and he tries to be positive and believe it is an infection. Today I cleaned his wound and stoma, and something started to grow in there. He eats less and I have to blend almost everything. I am scared and try to hide when I cry. My husband went through a lot, the pain he is able to handle is surreal. And I cannot believe he is so unlucky and got stoma recurrence, 3rd time recurrence. I know he is a very rare case but I am so overhelmed and scared and frustrated and I cannot imagine whats next. We live abroad for 6 years and I think the best think is to go home and be with our family. I am too scared of the next weeks and what is coming.
I know we have to wait for biopsy results but I do not know what to do. ENT mentioned something about Immunotherapy. I do not know how to handle it. And to see him suffering just break my heart.
Please accept my apologies for so long post. I know we all have a lot on our plates.