Medication

Hi all . I had a mastectomy in July with reconstruction ( which unfortunately failed) I've been on Letrozole since May . I've been experiencing explosive diarrhoea & was incontinent in a shop with no warning. I also have a persistent headache & severe joint pain. I'm nauseous all the time & sometimes can't eat . Had anyone else experienced this . Is there an alternative to letrozole that works ? I'm desperate.

 Thanks all

  • Oh my, you should chat to your GP about changing your meds. I was put on anastrazole and was told it was the best tolerated med. I've been on it now around two years, I did have some settling in side effects but seem mostly ok now...i do have aches that I take paracetamol for....but you shouldn't suffer in silence xx

  • Hello and thanks for your post

    It does sound like you are having a very difficult time time at the moment.

    Probably, the best thing to do is to speak to your specialist team about changing hormone treatment to see if it improves your symptoms. If you have a breast care nurse involved in your care then do discuss this with them.

    In the meantime the charity Breast Cancer Now have produced some information on side effects of letrozole and how to manage them.  You can look at the information by clicking here. 

    I hope things improve for you soon. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene