CA125

I recently had a blood test done and it came out showing I got ovarian cancer. I done scan and  tissue test which came out normal. Doctor want me to repeat the test in 3 months time. 3month just seems like eternity. I can't sleep, I feel so stress out. They just send me a letter stating what they said. Everytime I try phoning the doctor never can get through to book and appointment. I don't even understand what this all means. I am just sitting here in limbo, feeling emotional, thinking about death, and just crying most of the time by myself. Part of me feel like just giving up because mentally I feel like my brain is going to explode. I don't want to speak to my family about this because all they would do is worry about me all over again. This is me being up keep googling  trying to see that this means or trying to find answers at 3.30am . I am even surprised that the doctor surgery didn't get someone to phone me and explain everything to me. Everything just stressing me out, this is too  much . Is there anyone with any advise?

  • Hello and thanks for your post

    The CA125 is a protein found in blood. When the level is raised, it usually indicates that there is some sort of inflammation in the pelvic area. But it cannot tell the doctor exactly what is causing the inflammation. So it is not specific for ovarian cancer. Other conditions can cause this level to rise such as ovarian cysts, endometriosis and fibroids. The symptoms of ovarian cancer are also similar to other non-cancerous conditions. This is why doctors will not rely on the CA125 test alone to help diagnose someone. If necessary, they will suggest a number of tests such as an ultrasound scan  which looks at the pelvic area in more detail.

    If nothing was found on your ultrasound scan or tissue sample, then doctors tend to monitor the CA125 levels. If you are still worried and do not feel reassured by having your levels monitored in 3 months time perhaps you should go back to the GP to talk about your concerns. Your GP may consider referring you to a gynaecologist for further advice if needed.

    You can read more about the CA 125 test by clicking here.

    I hope you know more about your situation soon. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene