Mom stage 4 lung cancer

Hi, 

 

My mom was diagnosed with stage 3b /4 lung cancer, spread to chest wall and other lung, right mass being 5cm not sure on left lung.

 

They arent giving her chemo as she is currently 5 stone and has copd. 

 

They havent given us much information, just she has months and sent pallative care out day after diagnosis, she doesn't seem much different just being breathless and not really mobile now ie cant get the toilet, just womdering on other peoples experiences with this, what am i looing for with deteriation ect please.

 

She is sleeping a little more, but i wouldnt consider her palliative. 

 

Thanks for any information.

 

Also they couldnt do biopsy properly as the tumour was bleeding so much 

  • Hello, and thank you for posting.

    I am so sorry to hear what you and your family are going through, It is heartbreaking to see a loved one in that way.

    When someone is as poorly as you mum it can be difficult for the doctors to perform all the tests they would ideally like to.  Sometimes, treatments might cause more harm rather than benefit and so decisions about treatment have to be considered carefully. From what you have said your mum has advanced lung cancer.  There is information about advanced lung cancer on the link below which you might find helpful.

    www.cancerresearchuk.org/.../living-with

    When the doctors feel they are unable to cure a patient of their cancer this may be termed palliative care, and the focus becomes more on keeping the person comfortable and less focus on hospitals and examinations. The palliative care team who your mum was referred to, and you said visited, are now the specialist team who will care for you and your mum.  They are the experts in symptom control and emotional support for her and her loved ones. Often they can help people to be cared for at home rather than in hospital if someone wants to remain at home.  I've provided a link here with more information about them

    You have also asked about what might happen if your mum deteriorates.  As your mum becomes more poorly she will sleep more, eat less, become weaker and her care will move on to end of life care. I have provided some information here for you to read which may be upsetting but may answer some of the questions you may have.

    It is important you also have support in caring for your mum, and that you look after yourself too. Here is some information on being a care giver.

    Do take care, and if there is anything from this email that you want to discuss further, or you have any other questions please do not hesitate to contact us. Our nurse helpline number is Freephone 0808 800 4040, and the lines are open from 9am till 5pm Monday to Friday.

    Sarah,

  • Thank you for taking your time to reply xx

  • Hi, you don't say which lung cancer she has. There are some notable differences between the 2 types. I have small cell stage 4. My husband died of non-small cell 4 years ago. He didn't cope at all well with chemotherapy but I have coped very well and am now in remission (normally not more than months). 

  • Hi no. The biopsy bled to. Much and couldnt give us what time xx

  • Hi can i ask about hot flushes there getting more and more regularly, also shes bruising quite badley and we dont no how as just lies in bed... 

     

    Thank you for your t2 xx

  • Hello Jenleigh85 and thanks for getting back to us,  

    In advanced cancers, unexplained bruising (which is bleeding from blood vessels under the skin) can occur because the cancer is interfering with things in the blood that usually keep it in balance.  I can't explain exactly why this is happening with your mom as there can be a few different reasons, but do talk to the palliative care team about it. Also do let them know about the hot flushes and see what they suggest to help to try and control them so they are less of a bother.

    The palliative care team will want to be kept up to date with things like this and keep your mom as comfortable as possible so don't hesitate to get in touch with them. 

    I hope they can help,

    All the best

    Julia

  • Hi this is the same with my mom, she just lies in bed and shes bruising also quite badly, but she is on asprin so we thought it was from that 

  • Omg really sorry about your mum my husband has lymphoma stage 4 don't no what he going to do with treatment yet. How did they find her lung cancer