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Choosing a PICC line or central port for my chemotherapy

Ginni6
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Hello. In twelve days I am due to start chemotherapy for stage IV colon cancer that has metastasised to the liver. I have previously had two liver resections and chemo.

Due to the development of six further liver tumours in the last three months I am due to have a PICC line inserted for the latest chemo - FOLFIRI Encorafenib Cetuximab in combination (BREAKWATER  Study).  I found the PICC line used in my last treatment  was extremely difficult to manage and with the additional side effect of neuropathy it had to be removed a month before chemo was completed.  As my new treatment is for an indefinite period I am now wondering if I should have a central port as it should make daily life easier although it  also has risks and complications as does the PICC line. The central port also has to be implanted and I understand it cannot be removed at an NHS hospital.

I would really appreciate any thoughts that might assist me in making this difficult but crucial decision. Thank you. Ginni

Parents

  • Hello Ginni and thanks for posting

    I’m sorry to read about your situation and can appreciate this must be a difficult time for you.

    As your treatment is expected to continue long term, and you found the PICC difficult previously, a port is certainly worth discussing with your specialist team as soon as possible.

    A port sits completely under the skin. It is usually easier to live with day to day, it lets you shower and dress more normally, it does not need weekly dressings, is less likely to be pulled or knocked and may be easier to manage if your neuropathy affects your hands.

    it is also worth checking with your specialist team about what you’ve been told about removing a port. Many NHS hospitals do remove them when they are no longer needed, although local arrangements may vary.

    I hope this helps. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

  • Offline in reply to CRUK Nurse Celene
    1. Hi Celine. Thank you so much for all your helpful advice. I feel the unknown for me is how long I will actually be on the treatment as I understand it’s 20% harder than managing a single chemo treatment and some drop out after several months. If this becomes my situation I would perhaps have been better going with the PICC line. As my experience with the PICC line was unsuccessful - this may also lead to problems. I am so keen to make the right decision as this BRAF V600V is such an aggressive tumour and I currently have 7 tumours.
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  • Offline in reply to CRUK Nurse Celene
    1. Hi Celine. Thank you so much for all your helpful advice. I feel the unknown for me is how long I will actually be on the treatment as I understand it’s 20% harder than managing a single chemo treatment and some drop out after several months. If this becomes my situation I would perhaps have been better going with the PICC line. As my experience with the PICC line was unsuccessful - this may also lead to problems. I am so keen to make the right decision as this BRAF V600V is such an aggressive tumour and I currently have 7 tumours.
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