Myeloma

Hi, new on here would appreciate some advice. Diagnosed with myeloma in March this year, just completed the first 4 months of treatment, due to have a stem cell transplant in November. Been told that due to the melphalan I will lose my hair which I am devastated about as I hadn’t realised it would be so drastic. 
Has anyone used the cold cap system in particular the penguin cold cap and what were the results like thank you 

  • Hi Flowe, 

    When I had a stem cell transplant in 2013 , I was informed I couldn’t use a cold cap. I was told they were not used for blood cancer, as the idea was to target as much blood as possible. This obviously included the blood circulating in my head. 

    I don’t know if anything has changed since then and if they are now used. Myeloma UK would probably be able to give you more insight.