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Hormone side effects

Ohknee
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I seem to be suffering most of the side effects from Hormone Injection and I am now really depressed and fed up .

I have had 4 PROSTAP 11.25 injections and I am thinking of not having any more, What effect will that have on me.

My meeting with a consultant has been reduced to a phone call and I have not been informed in writing about my

last blood test last March which he said was undeterminable whatever that means 

  • Hi there oldknee and thanks for the post

    I am sorry to hear about how the hormone therapy is affecting you with your every day life, it does sound like it really is getting you down.

    Do speak with your doctor or specialist nurse ( if you have a contact number for one) and let them know how this is making you feel. Sometimes they can switch to a different type that may agree better with you but there are other ways in which they can help you better manage these side effects.

    The CRUK website has a section of information about living with the effects of hormone therapy for prostate cancer that may be helpful to read.

    There are occasions when people struggle to continue with a particular treatment. However it is important to speak with your own doctor about this to ask if there are alternative treatments available. They are also in the best position to tell you what stopping treatment will mean for you.

    You can request if it is possible to have a face to face appointment rather than a telephone call if you think this would be better for you. I am sure at the appointment the doctor will discuss your recent test results and what these mean.

    Do get back if you have more questions or if you prefer give us a call on 0808 800 4040, we're here weekdays 9-5.

    I hope things improve for you soon,

    Take care

    Naomi

  • Offline in reply to CRUK Nurse Naomi

    H1 Naomi,

    The only contact number goes to voice mail where I have requested a face to face meeting but they don't return the calls.

    regards Ohknee

  • in reply to Ohknee

    Hello Ohknee, and thanks for getting back to us,

    I am really sorry that you are finding it so difficult to get hold of anyone. I can imagine this must be so frustrating for you.

    I would try not to stop the medication until you have had a chance to speak to someone. It might be worth making an appointment with your GP to discuss how the hormone is making you feel.

    Prostate Cancer UK run classes on coping with the side effects of hormone therapy. You can sign up to a class and have a chance to speak to an expert about some of the issues that you are facing. It is also a good opportunity to meet others who are finding themselves in a similar situation.

    Trying to eat well with plenty of fruit and vegetables and drinking enough water and taking regular exercise which can include regular walking can also help.

    I hope that symptoms start to get better for you.

    The helpline nurses are here if you would like to talk about any of this. The number to ring is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

  • Offline in reply to CRUK Nurse Catherine

    Hi Catherine,

    My now follow a Mediterean diet and drink over 2 litres of water a day. I used to walk but I no longer have the energy. Last year I was playing golf 3 times a week walking the course now I struggle to get around the course once a week in a buggy, no walking and then fall asleep when I get home.

    My phone call is tomorrow afternoon so we will see if I am listened to.

    thanks for your reply

    Regards Ohknee

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