Mum's eating has reduced since finding out she's terminal. When should I raise the alarm?

HI there

My Mum was told her lung cancer was terminal 10 days ago with a prognosis of 12 months or less, and since then, has reduced her eating from a small but reasonable portion at teatime to either nothing at all or a couple of mouthfuls. She is managing some porridge at breakfast, with difficulty, and some soup at lunch but no carbs. She has also been drinking a protein drink the GP prescribed.

I'm unsure whether to wait for her first face to face appointment on Thursday with her assigned Sue Ryder nurse, or whether to raise the alarm tonight or tomorrow morning that her eating has reduced like this in the last 10 days. I'm also  unsure whether it's OK to call the Goldline to share concerns like this - or whether it's for urgent needs only. My sister seems to think we should wait until Thursday and not call Goldline. 

thanks in advance for advice

  • Hi there Jollyhead and thanks for your post,

    I am sorry to hear about your mum. This must be very difficult for your family.

    As long as your mum is taking in some food and fluids it should be fine until you see the Sue Ryder Nurse on Thursday. As long as she feels comfortable and is not in any pain, that is the most important thing. If you have any concerns I am sure that you could get in touch with Goldline.

    Try and give your mum what she wants to eat. Jelly can be easy to eat as can some ice-cream. Frozen fresh fruit lollies maybe a good idea as they are refreshing and can help if her mouth is feeling dry.

    Offer small frequent meals rather then larger helpings. Often patients with a terminal cancer don't have a large appetite and this will probably decrease as time goes on. Trying to focus on making her comfortable and giving her sips of fluid will help.

    World Cancer Research Fund is a charity run by dietitians and they may have tips on foods that your mum may enjoy.

    I do hope that her appointment goes well on Thursday.

    You are welcome to ring the helpline nurses to talk any of this through.

    The number to call is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine