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Worried sick

Cazza84
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Hi

So I have a 7cm ovarian cyst, they think it is caused by tubo ovarian sepsis from endometriosis, my ca125 level was 282 around 6 weeks ago, I had a fever, crp, wbc and neutrophils were all raised. My case went to an MDT meeting at start of oct, they have since written to me stating that after looking at my CT scan they say their are 'no clear features of malignancy'. This has been 6 weeks of sheer utter hell inside my own head, worrying, googling, trying to find answers. I have hardly ate or slept in 6 weeks. I had my ca125 level redone today. Im really really scared.

  • Hi Cazza84 and thank you for your post.

    I’m really sorry to hear how difficult the last few weeks have been for you. It sounds like you’ve been through a lot, and I can completely understand why you’ve been feeling so scared and overwhelmed.

    A 7cm ovarian cyst can sound worrying, but it’s reassuring that the team didn’t see any clear signs of cancer on your scan. Your CA125 level was raised, but that can happen with infections and endometriosis too; not just cancer. You’ve done the right thing by having it checked again, and I hope the new results bring you some peace of mind.

    Waiting is never easy, especially when you’re feeling anxious.

    Anxiety UK has a good website with helpful tips on how to deal with anxiety in these situations.

    Please get back to us if you need any more information or support

    It might help to talk things through with one of our nurses on the helpline. You can call for free on 0808 800 4040, Monday to Friday, 9am to 5pm.

    Kind regards
    Tina
  • Offline in reply to CRUK Nurse Tina

    Hi, I had my ca125 level blood test redone yesterday and got the results today, it has went from 282 to 164 in 5 weeks.

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