Essential thrombocythemia

Hi 

I am recently diagnosed with essential thrombocythemia I had bone marrow test and survived have started taking Hydra,1 500 mg a day recently changed to 2 x 500 2 days a week platelets have dropped to 342 

I am doing well I would like to hear from other people living with this please

kind regards

Mefein

Parents
  • Hi there and thanks for posting

    Sorry to hear you have been diagnosed with essential thrombocythemia, although it is good to hear you are doing well.

    You have posted on the ask the nurses section of the forum and whilst anyone is welcome to reply here you may hear from more people if you post on a different thread as well as on here.

    You may also like to look at MPN voice and Blood cancer UK information and resources as well to help you on your journey.

    Do get back in touch if you would like to ask any questions or if you prefer to talk over the phone give one of the nurses a call on 0808 800 4040, we're here weekdays 9-5.

    Take care

    Naomi

Reply
  • Hi there and thanks for posting

    Sorry to hear you have been diagnosed with essential thrombocythemia, although it is good to hear you are doing well.

    You have posted on the ask the nurses section of the forum and whilst anyone is welcome to reply here you may hear from more people if you post on a different thread as well as on here.

    You may also like to look at MPN voice and Blood cancer UK information and resources as well to help you on your journey.

    Do get back in touch if you would like to ask any questions or if you prefer to talk over the phone give one of the nurses a call on 0808 800 4040, we're here weekdays 9-5.

    Take care

    Naomi

Children