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Rapid Endometrial Hyperplasia

HedgieBear
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Hi,

i recently posted I’ve had many appointments and biopsies when I was diagnosed with simple hyperplasia back in December. July rolled round after taking 30mg provera everyday and they brought me in very prompt and told me I have complex hyperplasia with atypia. The big H was recommended but as I’m only 33 years old, in a loving relationship with my husband and childless I decided on the conservative route. I had a coil fitted which rejected witching days into my cervix completely traumatised me and gave me an infection. We went for 400mg of provera started in August. 6th August a biopsy was taken. I went for a second urgent MRI in beginning of September bear in mind I had one 6 weeks earlier. With all the treatment I have been phoned this morning to tell me I have a Grade 1 endometrial adenocarcinoma. I have no idea what it all means’s and I have to go in on Thursday to speak to a surgeon. What should I be asking him my mind is completely blown when she said this is rare; I’m not responding to progesterone and it’s very rapid. This was all over the phone and I’m overwhelmed. Thanks all!

  • Hi there and thanks for your post

    I am sorry to hear about your situation, this sounds like a anxious time for you and it is understandable you having questions.

    It is important for now to take things one step a time and wait and see what he surgeon has to say at your appointment on thursday.

    It will only be the team involved in your care who can explain exactly what this means for you and what needs to happen next.

    From what you are saying it sounds like the team are wanting the very best for you and are arranging things as quick as possible.

    Sit tight for now and I hope you are taking your husband with you on thursday so he can also listen to what is being said and ask any questions.

    Please get back in touch any time or if you prefer give us a call on 0808 800 4040, weekdays 9-5 .

    Best wishes

    Naomi

  • Offline in reply to CRUK Nurse Naomi

    Hi Naomi,

    Ive been to the Royal Marsden and their advice is the same, a hysterectomy at 33!! I’m scared and don’t know what to do I want to bury my head in the sand. It turned from pre cancer to cancer in a month and noticible differences between my first mri and the emergency one 6 weeks apart. They want to move quickly as although it’s grade1 the rate it turned is concerning. I don’t know what to think or do and I have another follow up in about 2 weeks. I’m to see the fertility specialist as my husband and I don’t yet have children. I’m at a loss and I don’t know where to start and don’t know what questions to ask. 
    Help!

    HedgieBear. 

  • in reply to HedgieBear

    Hi HedgieBear, and thank you for your further post

    I can only imagine how overwhelming and frightening this must feel right now. I can appreciate that it is difficult to know what to do next, especially when things have moved so quickly.

    Hearing that the diagnosis has changed in such a short time and that a hysterectomy is being recommended is a lot to take in. I am not surprised that you feel like you want to bury your head in the sand; many people feel that way when faced with such big decisions.

    I can appreciate that it is difficult to know where to start or what questions to ask. If you have a specialist nurse (CNS) you can contact, it might be worth speaking with them, as they know your situation, they can clarify things for you and might be able to help with questions to ask the specialist.

    It’s good to hear that you’ll be seeing a fertility specialist soon, as they’ll also be able to talk through your situation and explain what options may be available to you.

    If you would find it helpful to talk things through with one of the nurses on our helpline, you would be welcome to give us a call anytime between 9am and 5pm Monday to Friday freephone 0808 800 4040.

    Jemma

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