Multiple myeloma

I have been told my CT scan and bloods etc show multiple myeloma.

I have had two urgent referrals sent for screening, one from the hospital and one from my GP.

How long will I wait for my appointment?

I have waited two weeks and finding the waiting very difficult.

Please could you kindly advise me?

Parents
  • Hello Marinam 7879 and thanks for your post,

    I am sorry to hear about your situation. If you have had an urgent referral and have been waiting a couple of weeks I am sure you will hear very soon. You could give the haematology secretary a ring to see when you are likely to get an appointment.

    I can understand what an unsettling time you must be having but hopefully once you have a clearer picture of what is happening next it will be easier to get your head around it all.

    Once you have seen the haematologist you will probably have a haematology nurse who will help support you and offer you guidance and information about any forthcoming treatments.

    Myeloma UK is a useful organisation that you might find helpful to look at.

    We have some pages on our website about Myeloma which you might find helpful to look at.

    Do give the nurses a ring if you would like to talk things through.

    The helpline number is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

Reply
  • Hello Marinam 7879 and thanks for your post,

    I am sorry to hear about your situation. If you have had an urgent referral and have been waiting a couple of weeks I am sure you will hear very soon. You could give the haematology secretary a ring to see when you are likely to get an appointment.

    I can understand what an unsettling time you must be having but hopefully once you have a clearer picture of what is happening next it will be easier to get your head around it all.

    Once you have seen the haematologist you will probably have a haematology nurse who will help support you and offer you guidance and information about any forthcoming treatments.

    Myeloma UK is a useful organisation that you might find helpful to look at.

    We have some pages on our website about Myeloma which you might find helpful to look at.

    Do give the nurses a ring if you would like to talk things through.

    The helpline number is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

Children
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