Hello and thank you for posting.

I am sorry to hear about your mum's diagnosis of metastatic bladder cancer, and I can understand you would want some more information on her prognosis and what happens from here. Of course, as you say, they can only guess from their experience, but something more specific than what you were given would be helpful.

Sometimes doctors can feel it is a lot of news to give in one appointment, and the information is more broken down, as it is so much to process. Also, it may be that as not everyone always asks about a prognosis, or necessarily wants to hear one, the doctors don't always go into that detail at that time.

As you have said you can see changes in her already, and you know her better than anyone, so of course you may notice these changes sooner.

What may help is at the next appointment say to mum that you have some questions that you would like to ask. She can then decide if she wants to remain in the room whilst you ask for a more accurate idea of what they see for your mum from here.

Hopefully, she will be referred to a palliative care team to offer symptom management and emotional support in the community. It may be their team, when they come to meet and review Mum that can also give you some prognosis-type information from their experience.

Take care and do take care of yourself at this time. If you want to talk to the nurses on the helpline the number is 0808 800 4040. Lines open mon-fri 9-5.

Sarah

Thank you for your reply Sarah, 

The consultant has discharged her so she won't have anymore appointments. They introduced her to the McMillan nurse but they only told my mom and step-dad to contact her if she needs anything. We are not going to get anymore information so, I think we have to take one day at a time.

I'm not coping at all well, I went to my GP who has prescribed diazepam. Right now, I wish I don't feel anything because the emotional pain is unbearable. 

I appreciate your reply.

Thank you ,

Lisa

Thank you for your reply Sarah, 

The consultant has discharged her so she won't have anymore appointments. They introduced her to the McMillan nurse but they only told my mom and step-dad to contact her if she needs anything. We are not going to get anymore information so, I think we have to take one day at a time.

I'm not coping at all well, I went to my GP who has prescribed diazepam. Right now, I wish I don't feel anything because the emotional pain is unbearable. 

I appreciate your reply.

Thank you ,

Lisa

Hello Lisa, and thank you for getting back to us.

I am sorry that you are struggling, please do look after yourself at this time.

It may be that you can organise to talk to your mum's Macmillan nurse, if she allows her information to be shared, so you can explain that you haven't been given any prognosis information. But other than that it is taking each day as it comes.

Take care Lisa, and do give us a call if you want to chat.

Sarah.