MDT meetings

If you had a bilateral Salpingo-oopherectomy, with ovarian cyst, endometriosis lesions in pelvis and multiple adhesions attaching omental and uterus to anterior abdominal wall. Which was all dealt with in laparoscopy 4 weeks ago. 
ca125 was 12, MRI showed all of above but nothing suspicious for cancer. 
but 2.5 weeks post laparoscopy consultant (who is a oncologist laproscopy specialist) has an MDT meeting about you. They’ve written to GP about the meeting but I cannot access the letter as Dr hasn’t processed it yet receptionist said and as Xmas & New Year tricky. 

MY Question is: Would they have an MDT meeting about me anyway or could tissue results be cancerous? Do they have MDT meetings for my above circumstances in other words. 

I’ve spent Xmas & New Year petrified it’s ovarian cancer and nobody to ask. 
many thanks 

V

  • Hi

    Yes, all cases are reviewed by the MDT meeting prior to results being given to the patient.  I had surgery in early August for removal of a tumour, my results were discussed before I was called with the good news that it was benign.

    Try not to worry too much.  I hope that you get good results soon.

    Annie

  • Hello Underclay and thank you for posting.

    I hope you are recovering well from your surgery.

    MDTs (multidisciplinary team meetings) involve different health professionals such as surgeons, oncologists, specialist nurses, and radiographers. Although it mostly involves planning treatment for patients on a cancer pathway, MDTs will also review test results and have a role to play in making a diagnosis which isn't always cancer, especially if it is a complicated situation and input from other doctors is needed. 

    I can appreciate this has been an anxious and stressful time for you, and hopefully, you do not have to wait too long to find out more. In the meantime, easier said than done try not to overthink things. If you would like to talk things through with one of our nurses on the helpline, the freephone number to call is 0808 800 4040 and we are available between 9 am and 5 pm Monday to Friday.

    Take care,

    Jemma

  • Hi,

    I had feedback from the consultant oncologist who performed my bilateral salpingo oopherectomy yesterday. The MDT was to discuss next steps as lab tests came back as a borderline ovarian tumour. I’m 64, 15 years post menopausal so an unusual find. I don’t have any other details yet except he said as I’d had the surgery already I shouldn’t need any further treatment. I have a follow up in 10 days and they will monitor me 6 monthly with scan and blood tests thereafter to make sure nothing changes. 
    what I would like to say to other women is do Perdue symptoms you get and be persistent in asking for a diagnosis. I had 5 years of bladder problems, followed by intermittent back pain, then lots of bloated tummy issues. Nobody took me seriously until I had My own MRI due to my suspicions of what I read online about cyst symptoms. Finally I had to collate my own symptoms and risks re family history of cancer before I managed to get an urgent referral from one of the very astute GPs at my practice. The consultant initially dismissed my back pain symptoms as a disc issue, my bladder problems as my age. He gave me 3 choices to answer there and then in the consultation: 1.leave alone, 2: ovaries, tube & cyst out. 3. 2+uterus. I opted for 2 thinking about my bladder. My surgery happened 5 months later Dec 24).

    sad because not everyone can afford to pay for their own MRI and sad because I saw so many specialists over the 5 years including a urologist, 2 A & E consultants but none of them would believe me that I though I had an ovarian cyst. All of them kept saying you’d be in so much pain. 

    So the moral of my story which could have had a very different outcome. Be persistent don’t let them dismiss your gut feelings. Us ladies know when something is wrong with our bodies. Our bodies talk to us so listen to it. 
    Very confusing what you read online but I think a good outcome as opposed to the possibility that it could have been ovarian cancer. The prognosis for BOT looks good. 
    Am I correct? Is it unusual to discover this in someone aged 64?

  • Hello and thank you for posting.

    I am sorry that you have had many years of problems and didn't feel listened to.

    Borderline ovarian tumours are more common in younger women, but I am glad for you that this has been found and sorted.

    Take care,

    Sarah.

  • Dear Sarah,

    I just received a letter to attend an urgent referral appointment for endometrial scan and hysteroscopy. No letters, no formal diagnosis in writing with any explanations, between consultant’s call on 8th to tell about the BOT finding in laparoscopy 5 weeks ago. He just said I’d be followed up every 6 months. So confused now. The communication has been dreadful?  Are they just ruling out endometrial cancer?

  • Hello Underclay and thanks for getting back to us again.

    I am sorry to hear about your situation. I can understand that being told one thing and then another thing happens can be very unsettling. The doctors may have seen something on the laparoscopy that they felt needed to be investigated further. It is difficult without being involved in your care to say why they want to do more tests.

    Try if you can to take one step at a time.

    I know it is hard but until they have done the further tests no one will be able to tell you anymore.

    If you would like to give the nurses a ring on the helpline then you are welcome to do so.

    Our number is Freephone 0808 800 4040 and the lines are open Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine