Palliative care for AML

Hello,

We've been informed today by my Dad's medical team that we need to prepare that they may need to stop his treatment for AML as he's had too many side effects from chemo to cycle 1. It looks like we will soon be moving to palliative care. Please could you let me know what this is likely to mean for him. Will he be able to choose where he receives care? If at home, what support would we be likely to get? How long do AML patients survive without treatment? Dad is 82.Is there anything else you can tell me to help prepare me for this and how best to support my family?

Many thanks,

Tilly

Parents
  • Hi Tilly, I'm sorry to hear this. My dad has been diagnosed, it's come as a complete shock as he's a fit strong man. He's 74. We've been told the treatment he can have tends to stop being effective after 18 months. Its also going to put him at high risk of infection. How was your dad on treatment? Time is so precious. Is the treatment worth it? 

  • Hello and thank you for for posting.

    I am sorry to hear about your dad and his diagnosis of AML. I am responding to you as it has been a little while since Tilly posted.

    How people get on with treatment is quite individual, but it is good for Dad's doctors to know you are concerned about his quality of life. They will be able to talk more about the benefits and risks of treatment so that he can make informed decisions about his care.

    Blood Cancer UK also provides information and support if helpful at this time.

    Take care and if you want to talk anything through with the nurses on the helpline the number is 0808 800 4040. Lines are open 9-5, mon-fri.

    Sarah.

Reply
  • Hello and thank you for for posting.

    I am sorry to hear about your dad and his diagnosis of AML. I am responding to you as it has been a little while since Tilly posted.

    How people get on with treatment is quite individual, but it is good for Dad's doctors to know you are concerned about his quality of life. They will be able to talk more about the benefits and risks of treatment so that he can make informed decisions about his care.

    Blood Cancer UK also provides information and support if helpful at this time.

    Take care and if you want to talk anything through with the nurses on the helpline the number is 0808 800 4040. Lines are open 9-5, mon-fri.

    Sarah.

Children
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