Palliative care for AML

Hello,

We've been informed today by my Dad's medical team that we need to prepare that they may need to stop his treatment for AML as he's had too many side effects from chemo to cycle 1. It looks like we will soon be moving to palliative care. Please could you let me know what this is likely to mean for him. Will he be able to choose where he receives care? If at home, what support would we be likely to get? How long do AML patients survive without treatment? Dad is 82.Is there anything else you can tell me to help prepare me for this and how best to support my family?

Many thanks,

Tilly

  • Hello Tilly and thanks for your post,

    I am sorry to hear about your dad. This must have been difficult to hear what the doctors had to say.

    A lot will depend on the general fitness of your dad and the type of AML (Acute Myeloid Leukaemia) that your dad has. His doctors are in the best position to talk to you about what will happen next and how long he may go on without treatment (prognosis).

    I am not sure whether you have had a discussion with your dad about where he would like to be. If he is up and about and relatively well he may want to be at home. Also if he has a lot of support from family and friends this may be the best option but it is completely up to him as to where he feels comfortable.

    Your dad's GP manages his support at home. This will vary slightly depending on where he is living. It might be worth contacting his GP to see what help he may be able to access.

    Further down the line depending on your dad's situation you may want to look at other options depending on how your dad is coping. You don't need to make any plans if he doesn't want to at this stage as there is a lot to take on board.

    We do have a page on our website about choosing where to die.

    Leukaemia Care has produced some information from a patient's perspective of dying with leukaemia which you may find helpful to look at.

    Try and take one step at a time. Make sure that you get some support for yourself.

    If you or your dad would like to talk any of this through with one of the helpline nurses then you are welcome to give us a ring.  The number to call is Freephone 0808 800 4040 and the lines are open from 9 am till 5 pm, Monday to Friday.

    All the best,

    Catherine