Hi Sam 

My wife has something similar with the same problems and also had to be fed via a PICC line for nearly 2 weeks before they were able to insert a nasal feeding tube through the blockage. If they can get nutrients into you that way and hopefully they can get a feeding tube down into your upper intestine then I wonder why you are still trying to take food via mouth. My wife could not do so without vomiting it all back up so there did not seem to be any point. Once on the feeding tube she was able to put on a couple of Kg weight without having to eat anything orally. She is home now without the feeding tube following the insertion of a stent to open up the blockage caused by the cancer and can take very small amounts of food via mouth now but still needs to take an anti sickness drug. This is cyclazine a fairly old drug now but it seems to work mostly except if she gets a coughing fit which sets of the nausea. 

While Susan was in hospital the patient beside her had the same problem as yourself but the medics were still struggling to get it under control when my wife was discharged. Don't know if any of that is any use to you but I wish you well and hope the medics can get it under control. Everything that happens in hospital is mind numbingly slow so you must try and have some patience. It's all incredibly frustrating.

Wishing you well

Ashley

Hello and thanks for posting

I'm really sorry for what you are going through right now. This must be incredibly tough for you.

There are a number of different anti sickness medications that may help nausea and vomiting and sometimes it’s trial and error to get the right combination that will work. We do have some tips on our website about managing nausea which you might find helpful.  As your current anti-sickness medications are not working do speak to your doctors about trying different medications to see if they work better. Doctors will sometimes prescribe a short course of steroids as this can sometimes help with nausea and vomiting.

I'm sorry you feel forgotten at the hospital. Many hospitals have cancer information and support services that provide emotional and psychological support. You can ask what support services are available to you.

I see that you are seeing your oncology team next week. You might want to write a list of question that you want to ask them to get the most out of the appointment.

I hope this reply helps a little. Give us a ring if you would like to talk things over.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Kind regards,

Celene

Thank you for taking the time to reply. I couldn't tolerate a nasogastric tube and I think I'm a way off a feedingjej yet :(

Nothing is going fast. I am very shocked at how slow everything IS going. 

Thank-you.

They're going to try metoclopramide at an increased dose and haloperidol now.