Nausea, how do you manage it? Just been diagnosed with gastroesophageal junction adenocarcinoma

I have just been diagnosed with gastroesophageal junction adenocarcinoma. I had a PET scan today.

I am 56. Normally fit and well. A few months ago, I began to struggle with dysphagia. It got to the point where I couldn't keep anything down and I was losing weight (3 stones). 

I am now being fed via a PICC line with TPN. I have been in hospital 3 weeks. I feel forgotten. I have an Oncology appointment next Friday 11th October. 

My biggest issue is the nausea and "vomiting". I have found that sleeping helps, but as the day progresses, the nausea hits about 1pm then stays for the remainder of the day. I can't eat anything substantial without bringing it back up. The vomiting/retching just really brings up frothy mucous. 

I can manage ice-cubes. I'm trying sea-bands. I can manage a tiny amount of custard. Ginger tea. I've done research myself as very little is coming my way. Initially, they messed up my anti-emetics and they cancelled each other out and literally turned me into a zombie. I am now on metoclopramide and ondansetron, but they don't really help. 

I am at my wits end. 

Parents
  • Hello and thanks for posting

    I'm really sorry for what you are going through right now. This must be incredibly tough for you.

    There are a number of different anti sickness medications that may help nausea and vomiting and sometimes it’s trial and error to get the right combination that will work. We do have some tips on our website about managing nausea which you might find helpful.  As your current anti-sickness medications are not working do speak to your doctors about trying different medications to see if they work better. Doctors will sometimes prescribe a short course of steroids as this can sometimes help with nausea and vomiting.

    I'm sorry you feel forgotten at the hospital. Many hospitals have cancer information and support services that provide emotional and psychological support. You can ask what support services are available to you.

    I see that you are seeing your oncology team next week. You might want to write a list of question that you want to ask them to get the most out of the appointment.

    I hope this reply helps a little. Give us a ring if you would like to talk things over.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

  • Thank-you.

    They're going to try metoclopramide at an increased dose and haloperidol now. 

Reply Children